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Why is my neuropathy worse while driving?

Posted by ssheid @ssheid, Jan 20, 2019

Why is my neuropathy worse while driving?

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pfbacon | @pfbacon | Jul 10, 2020

I take a small amount of B12 daily during the summer months because it repels mosquitos - it makes us not smell like food to them. I haven't noticed any less neuropathy symptoms, but I will pay attention to that and let you know. Peggy

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Rachel, Volunteer Mentor | @rwinney | Jul 10, 2020
In reply to @pfbacon "I take a small amount of B12 daily during the summer months because it repels mosquitos..." + (show)
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I take a small amount of B12 daily during the summer months because it repels mosquitos - it makes us not smell like food to them. I haven't noticed any less neuropathy symptoms, but I will pay attention to that and let you know. Peggy

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Mosquitos, huh? Interesting. Is that why I got eaten alive when I was deficient?!?! 😂

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John, Volunteer Mentor | @johnbishop | Jul 10, 2020
In reply to @pfbacon "I take a small amount of B12 daily during the summer months because it repels mosquitos..." + (show)
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I take a small amount of B12 daily during the summer months because it repels mosquitos - it makes us not smell like food to them. I haven't noticed any less neuropathy symptoms, but I will pay attention to that and let you know. Peggy

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Hummm...I take a lot of B12 daily and still get eaten alive by them flying critters. Bummer....😂

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pfbacon | @pfbacon | Jul 10, 2020

Maybe it's just one of those medical stories that go around ... Peggy

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dcgirl | @dcgirl | Jul 10, 2020
In reply to @johnbishop "@dcgirl, B12 is just one of the supplement I take for my small fiber peripheral neuropathy...." + (show)
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@dcgirl, B12 is just one of the supplement I take for my small fiber peripheral neuropathy. I've been taking it since 2016 and I feel like it has helped me by slowing and possibly stopping the progression of my neuropathy. I still have numbness in my feet but it's not as bad as it was when I started taking the supplements listed in the discussion below. I don't believe there is any one single vitamin you can take to help with the pain or numbness of neuropathy.

Protocol 525 product for neuropathy relief?
-- https://connect.mayoclinic.org/discussion/have-you-tried-the-new-protocol-525-product-for-neuropathy-relief/

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Thanks. Good info. I appreciate it.

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pfbacon | @pfbacon | Jul 10, 2020

Thank for all these suggestions -- I will try them all -- have nothing to lose, right? Peggy

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plbelanger | @plbelanger | Jul 13, 2020

I don't like driving and try to avoid it when possible. I cannot feel if my feet are on the pedal or not or how hard I'm pressing down. For me it feels dangerous to even attempt to drive. I also feel more like my focus is more on my feet and if they are in the correct position rather than the road.

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dcgirl | @dcgirl | Jul 13, 2020

I am in the same boat. I had an accident and stopped driving last year. I don't want to hurt anybody.

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sueholdenf | @sueholdenf | Feb 8, 2022
In reply to @pfbacon "Mine gets worse whenever I'm not up and about, walking or running. The morning is the..." + (show)
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Mine gets worse whenever I'm not up and about, walking or running. The morning is the worst. I drive about 5 hours regularly - just the last few months my feet and legs have been getting numb and painful after about an hour so I make a pit stop, hobble around until the stiffness is gone, then get back on the road. I don't know why, I just know that it does. My neurologist said that it's Restless Leg Syndrome which quite a few of us seem to have.

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Old post I know , yet I’m not seeing much about SFN patients changing their vehicle to hand controls if there is loss of sensation to the feet and legs

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pogo | @pogo | Feb 9, 2022
In reply to @sueholdenf "Old post I know , yet I’m not seeing much about SFN patients changing their vehicle..." + (show)
Profile picture for sueholdenf @sueholdenf

Old post I know , yet I’m not seeing much about SFN patients changing their vehicle to hand controls if there is loss of sensation to the feet and legs

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I have similar but not as bad. Try compression socks and there is a natural supplement that has shown to be beneficial to circulation in legs. PM me as I hesitate to name specific companies

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