Sweats after a kidney transplant

@ljadawag I had terrible sweats, or as I referred to them, hot flashes, after my liver transplant. I believe the immunosuppressants can cause them. They used to be really bad, waking me up numerous times during the night, but now I only get about one a night, so that's more tolerable. I also did have them during the day.
I am two years and 4 months on the immunosuppressants now. I think things improved at around the two year mark.
JK

I’m officially 13 and I just got a transplant about a week ago! I’ve been having HORRIBLE night sweats(waking up completely soaked when wearing a gown and no blankets) leaving me with no sleep at night. They only happen at night! It’s very annoying and I hope this doesn’t go on for long 🙁

Hi @lilhatter and welcome to the Transplant group on Connect. Congrats on the successful transplant. Did you have a kidney transplant? Reading through the past messages in this discussion, I see that many things can contribute to night sweats from menopause to blood pressure medications to the immunosuppressants. Given that you are 13 years old, I'm guessing the first 2 causes can be ruled out. 🙂 Have you asked your doctor about the night sweats and the side effects of immunosuppressants?

I really hope that this side effect is temporary. Do you get the sweats when you sleep during the day?

Hi! My name is Law and I had a Liver transplant 8/14/18 and since then I have had the sweats also. I went from being cold all the time (partially because my blood count was super low before transplant) but now I am sweating all the time.

@lilhatter @lawm Welcome to Connect, and congratulations on your recent transplants. It’s a wonderful feeling to finally be on the other side of this.

As @colleenyoung commented, this is more than likely due to the immunosuppressants. Recently mine have increased again, my liver transplant was in September 2016. It varies greatly so I’m trying to figure out if something else causes them to be worse. So far the only two things I have considered are not drinking enough water and other fluid, and possibly eating sweets. If yours vary also you might try tracking what you eat. I doubt it’s possible to eliminate them entirely but you may be able to minimize them. If you do figure anything out I would love to hear about it.
@lawm I was always freezing before my transplant. I wore layers to bed. That is a typical affect when you have liver problems.
JK

@lilhatter, I want to check in with you this morning. Have your horrible night sweating become any less horrible? I hope that as your medications become adjusted to your individual needs, that you will feel some relief.

Lilhatter, I have been living with my 'new' kidney for 10 years. At a month post transplant, How are you and your kidney getting along?

I have had a kidney transplant for 5 years and hot flashes every night very hot 🔥 and doctors don't know what to do any help. Kathy

@kathydavis707 - I want to welcome you to Mayo Connect. I am inviting you to this discussion where other members have shared their experiences with hot flashes after transplants. I read that you are a kidney recipient, and I assure you that you are not alone. Since this is a short discussion, I encourage you to go to the beginning and read the posts that have already been posted. You can see that @cmael is a kidney recipient, @contentandwell is a liver transplant recipient. and I am a liver and kidney recipient. So grab yourself a cup of tea or coffee and join in the conversation.
Have your hot flashes started suddenly? Do you consider these to be a this to be an uncomfortable inconvenience? Or are they disrupting your quality of life and causing lack of sleep?

No hot flashes. Just a bit of hair loss and 10# weight gain. Ugh. No increased appetite either. However even though I’m walking 5000 to 7000 steps a day, I can’t budge my weight. I have a big kidney and nothing fits. Grateful for the kidney, just trying to find my new normal

@deakinoh, Welcome to Connect. And Congratulations on your kidney transplant and your ongoing recovery. I'm happy that you have joined us on Connect as you continue your journey toward your new future!

Weight gain after transplant is something that I and many others struggle with after transplant. I was skin and bones after my transplant (liver and kidney) when all of the excess fluids were back to normal. As odd as it sounds I was told to eat to gain weight at first.

I would like to share this article that was featured in the Connect Transplant Blog The Blogs are articles that are written by the the Transplant staff about topics of interest to Transplant Patients and their Caregivers. I like this reference article because it provides some assurance that it is a common struggle, and it gives some tips for exercise and eating tips.

-Transplant > Weight Gain After Transplant: Where Does it Come From and How to Get Rid of It
https://connect.mayoclinic.org/blog/transplant/newsfeed-post/weight-gain-after-transplant-where-does-it-come-from-and-how-to-get-rid-of-it-2/

Deakinoh, It can make a difference whether you are comparing your current weight to your pre transplant 'normal' weight or to your post transplant weight. Your weight can be affected by any excess fluids if your body is still carrying extra fluids. Weight gain can also be a problem for some people who take prednisone.
At my 4 month post transplant surgery visit, I had an appointment with a transplant nutritionist who was able to give me some helpful suggestions about my own personal food preferences. I believe that meeting, gave me a good foundation for a healthy diet and for developing a pattern for making good food choices. Does your transplant center offer any nutrition guidance?