seizures and bacopa monnieri supplementation

@joedavid
Afraid I can’t help you. I have never heard of that. I never used Marijuana in any form. There is ongoing research that’s showing positive results, especially in children. I’m not familiar with a Keppra Cancer relationship although there is ongoing research associated with Cancer and some Seizure meds. Dilantin and Phenobarbital show a relationship in some studies and little to no relationship in others. Since I’ve taken Dilantin for 30-40 years and Phenobarbital for 51 years I try to keep somewhat informed. What type seizures do you have Focal, Tonic Clonic or Myoclonus? If you can find an alternative treatment it would be safer than Anticonvulsants. A few people I know use B vitamins to control their E.
Health and happiness to you,
Jake

Hi, Im 40 yrs old, @joedavid I have tried the medical cannabis and it has done absolutely NOTHING to stop my seizures. I had started out doing the drops, got up to doing 18 drops under my tongue 3x a day with no help. When Inwould have a seizure I would do the vape, it pretty much just knocked me out. Slept really good and thats the only plus im getting out of it. Havent done the regular street marijuana. I dont see how it could help anything. Everybody is different, seems like it helps children better to me. Good luck to you!

@joedavid - just wanted to confirm you are saying that you have taken bacopa monnieri supplements to help stop seizures, and they instead have given you mini-seizures?

Have you had the chance to talk with your doctor about what she or he thinks about your going off of levetiracetam (Keppra)? Sounds like cancer risk is your biggest concern with this medication, then?

I've also taken Keppra to maintain my seizure activity successfully for over ten years and am still wary of it's side effects. One very important thing your article mentioned was recognizing a trigger, it can help immeasurably to understand how and why your seizures occur. Definitely discuss your suspicions about these specific causes of your seizures and why/when they are occurring with your doctor.
Is it ONLY when you take vitamins/supplements that your mini (possibly focal) seizures occur? It's an interesting trigger for seizure activity. Try to discuss what supplements are causing you seizures, their onset and how often they're occurring; much like in your article. Sometimes writing that information down prior to an appointment helps ease the conversation and end up providing you with a more specified response. There may be a common ingredient within the supplements you've taken that you respond to, or it could be a variety of other reasons.
I'm sure this seems like mundane advice but when it comes to any form of consistent seizure activity, it can be individualized and different for every person, so talk with your physician.

@hipmiddleagedlady
Good Morning!
Very useful what you shared here. By learning my triggers, I am better managing my seizures. According to readings I have done, there are two classes of triggers: physical and emotional. Physical triggers can be the monthly period of women, little sleep, medications, certain foods, etc. The emotional triggers can be anxiety, stress, fear, etc. In physical triggers, for example, I have discovered that gluten is a big trigger to my seizures, following a gluten-free diet since 2021 and having reduced my seizures by 60%. My emotional triggers are stress and anxiety, mostly. By doing a daily epilepsy journal, I could better understand my triggers and manage them.
Have a nice day!
Chris (Santosha)