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Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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Merry, Alumni Mentor | @merpreb | Jul 16, 2019

@tmmmrlts- Good morning. I'm so glad that your grandchildren are a comfort, and that you are sleeping at least. No matter what kind of relationship we have with a spouse, loving or otherwise, it's not easy to lose them. And time will be your best healer, and for you church and your beliefs. Other than church are you getting out at all? Are you ready for that?

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tmmmrlts | @tmmmrlts | Jul 16, 2019
In reply to @merpreb "@tmmmrlts- Good morning. I'm so glad that your grandchildren are a comfort, and that you are..." + (show)
@merpreb

@tmmmrlts- Good morning. I'm so glad that your grandchildren are a comfort, and that you are sleeping at least. No matter what kind of relationship we have with a spouse, loving or otherwise, it's not easy to lose them. And time will be your best healer, and for you church and your beliefs. Other than church are you getting out at all? Are you ready for that?

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Yes I am going places my friends her and her husband have been there for me through all of this. we go out and eat lunch together. His cousin and I went to sikeston and went shopping together and had lunch.

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Merry, Alumni Mentor | @merpreb | Jul 16, 2019

@tmmmrlts - This is great news! I'm so glad.

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girlbybay | @girlbybay | Jul 17, 2019
In reply to @kathydyd "I am so sorry. He is so young. I smoked for 46 years. Your husband needs..." + (show)
@kathydyd

I am so sorry. He is so young. I smoked for 46 years. Your husband needs to choose - life or premature death. Give it up one cigarette at a time. The urge comes on so strong, but it goes away once you fight it. I love being a non-smoker. I no longer feel like I have leprosy. It has been 4 years and there are things I do miss about it, but I know/hope that my choice to stop will allow me more time with my kids and grandkids.

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Smoking , quitting can be done when you have a strong will to live!!

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girlbybay | @girlbybay | Jul 17, 2019
In reply to @tmmmrlts "He has had copd since 2011, and dont know how long he has had pulmonary fibrosis,..." + (show)
@tmmmrlts

He has had copd since 2011, and dont know how long he has had pulmonary fibrosis, or the honey comb lung and it's been almost a year since he was diagnosed with mac bacterial infection.
I know my husband and he is not one to just sit around and do nothing. But he has been running fever in the afternoon and throwing up every day. No matter what he eats. He has lost 20 lbs in about a month. He lays down more than he ever has. I brung this up to his dr in dec and he said I will let the infectious disease dr handle it. We have used this doctor for 30+years and I dont understand him anymore.

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I wish you the best of luck and I would see another doctor, sounds like the one you used all these years is not what you need. Have you seen a pulmonary doctor?

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girlbybay | @girlbybay | Jul 17, 2019

Sorry for your loss, didn't see the later posts, God bless, Sincerely Jeanette

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tmmmrlts | @tmmmrlts | Nov 20, 2019
In reply to @merpreb "@tmmmrlts - This is great news! I'm so glad." + (show)
@merpreb

@tmmmrlts - This is great news! I'm so glad.

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Just letting you know I am In school i am trying to get my high school diploma. I hope and pray all of you on here are doing okay.
Still struggling. Thank you. Wishing everyone a very good Thanksgiving

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Linda | @llwortman | Nov 20, 2019
In reply to @tmmmrlts "Just letting you know I am In school i am trying to get my high school..." + (show)
@tmmmrlts

Just letting you know I am In school i am trying to get my high school diploma. I hope and pray all of you on here are doing okay.
Still struggling. Thank you. Wishing everyone a very good Thanksgiving

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You are so special! Remember, one day at a time, one class at a time, one quiz at a time, one test at a time, and you will walk with pride and you will receive your deploys! Never give up and know that you are in many peoples thoughts and prayers. We would love 2 invitations to your graduation, so we can celebrate with you! You are the BEST! Never give up❤️

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Merry, Alumni Mentor | @merpreb | Nov 20, 2019
In reply to @tmmmrlts "Just letting you know I am In school i am trying to get my high school..." + (show)
@tmmmrlts

Just letting you know I am In school i am trying to get my high school diploma. I hope and pray all of you on here are doing okay.
Still struggling. Thank you. Wishing everyone a very good Thanksgiving

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@tmmmrlts- It is so very good to hear from you. Good for you going back to school. You will never regret this. I think that you know it will also help your healing from the loss of your husband and give you a chance to stay focused. Don't be afraid of letting go and not feeling guilty of anything that that you do not need to be. Where will you be spending the holidays?

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tmmmrlts | @tmmmrlts | Nov 20, 2019

I don't know where I will spend it at yet. My son is in Texas working don't know if he is coming home or not.

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