1. < Lung Health

Copd, pulmonary fibrosis, mac bacterial infection and honeycomb lung

Posted by tmmmrlts @tmmmrlts, Jan 7, 2019

My husband has been diagnosed with all four of these and I just want to understand more about what is to be expected. And what I can do to help.

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tmmmrlts | @tmmmrlts | Mar 6, 2019
In reply to @jenniferhunter "@tmmmrlts Here is a website that talks about non toxic cleaning with safer common ingredients like..." + (show)
@jenniferhunter

@tmmmrlts Here is a website that talks about non toxic cleaning with safer common ingredients like dish soap, baking soda, vinegar, hydrogen peroxide, etc. I have asthma and I'm triggered by fragrances and chemicals. Bleach and Pinesol bother me too. We don't really need special cleaning products full of chemicals.
https://learn.eartheasy.com/guides/non-toxic-home-cleaning/

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@jenniferhunter @merpreb Thank you both I will check it out. I appreciate it

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tmmmrlts | @tmmmrlts | Mar 6, 2019
In reply to @baz10 "Maybe he can tolerate tea tree essential oil and vinegar. Also there is a peroxide cleaner..." + (show)
@baz10

Maybe he can tolerate tea tree essential oil and vinegar. Also there is a peroxide cleaner that you might be able to use. Look up non toxic cleaners on the internet and perhaps you will find something useful. Best wishes.

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@baz10 Thank you

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tmmmrlts | @tmmmrlts | Mar 16, 2019

We found out they need to get rid of the mac bacterial infection other than that nothing new. Cant proceed until it's gone so back on 1650 mg of antibiotics a day. So go back in May. Thank you everyone for listening to me.

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1 reply
tmmmrlts | @tmmmrlts | Mar 31, 2019
In reply to @tmmmrlts "We found out they need to get rid of the mac bacterial infection other than that..." + (show)
@tmmmrlts

We found out they need to get rid of the mac bacterial infection other than that nothing new. Cant proceed until it's gone so back on 1650 mg of antibiotics a day. So go back in May. Thank you everyone for listening to me.

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My husband is in the hospital. Trying to get rid of pneumonia and started him on 4 antibiotics for mac

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Merry, Alumni Mentor | @merpreb | Apr 1, 2019

@tmmmrlts- Good morning. I'm glad that your husband is finally getting the help that he needs. How is he feeling? What are the scans showing? How are you doing? I know that you have been through a lot .

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tmmmrlts | @tmmmrlts | Apr 3, 2019
In reply to @merpreb "@tmmmrlts- Good morning. I'm glad that your husband is finally getting the help that he needs...." + (show)
@merpreb

@tmmmrlts- Good morning. I'm glad that your husband is finally getting the help that he needs. How is he feeling? What are the scans showing? How are you doing? I know that you have been through a lot .

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@merpreb sorry been at the hospital with him in it. His pneumonia started coming back. When he walks to the bathroom or sometimes even stands up his oxygen drops and heartrate goes up way high. He took a pft test and couldn't walk 300ft they had him stop. They did a ekg said it shows abnormalities, they are going to do a ultrasound of his heart .to see if or what is wrong . That about all until tomorrow night. I am doing ok. I have to right now I have to be the strong one.

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Merry, Alumni Mentor | @merpreb | Apr 4, 2019

@ tmmmrlts- Good morning. It's so tough to watch someone you have been with for so long struggle. I'm sorry that you are going through this, both of you.
Please take care and check back when you can. Am thinking of you

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alycallaghan1 | @alycallaghan1 | Apr 4, 2019

Tmmrits, God bless and help you both, it's sound about as tough as it gets. My prayers are with you also as many others.

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alamogal635 | @alamogal635 | Apr 4, 2019
In reply to @tmmmrlts "@merpreb sorry been at the hospital with him in it. His pneumonia started coming back. When..." + (show)
@tmmmrlts

@merpreb sorry been at the hospital with him in it. His pneumonia started coming back. When he walks to the bathroom or sometimes even stands up his oxygen drops and heartrate goes up way high. He took a pft test and couldn't walk 300ft they had him stop. They did a ekg said it shows abnormalities, they are going to do a ultrasound of his heart .to see if or what is wrong . That about all until tomorrow night. I am doing ok. I have to right now I have to be the strong one.

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It is tough going through this. Am thinking fo you and your husband. Please know my thoughts and prayers are with you.

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tmmmrlts | @tmmmrlts | Apr 5, 2019
In reply to @merpreb "@tmmmrlts- Good morning. I'm glad that your husband is finally getting the help that he needs...." + (show)
@merpreb

@tmmmrlts- Good morning. I'm glad that your husband is finally getting the help that he needs. How is he feeling? What are the scans showing? How are you doing? I know that you have been through a lot .

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@merpreb the scan is showing he has minimal air space left. Due to the mac bacterial infection and other things he has. They keep bumping up the oxygen to 8 or 10 then turning it back down to 6. They are talking about a feeding tube. Because he gets to out of air eating

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