Brain fog update

Good to hear...hoping he gets stronger each day. You are a very brave and caring person to care for him... I can only imagine what it's been like for You! We all care about you too...you are strong!

@gaylea1 I hope you are out of the hospital at this point. That's great that your kids will take charge of cooking dinner and exchanging gifts. We have had that here for a number of years now but this year, due to timing, I had to do most of the cooking.

Do they know what caused the splinted artery, and what symptoms led you back to the hospital?
JK

@contentandwell They never really explained how the artery splintered. I know that it is doing well now. I am stiĺl in hospital with new developments. The back to back surgery has left me with pneumonia. We are working on that with meds and I walk and get around. Sit up most of the time. And now just found that i have type 2 diabetes due to the prednisone and various steroids. I am overehelmed and confused. Guess I'll be here a bit longer.

@gaylea1 Wow, this is not how you wanted to be gifted at this time of year [or any time of year!]. I hope that things settle down for you soon, that the meds get worked out.
Ginger

@gaylea1
Ugh! Really?!! Well then I guess we will refocus... it is good you got the artery under control and that your pain is being closely monitored. Rosemary is right...no one's story is the same. It's hopeful that the DOCS are learning something new from each of us..

@gaylea1 You sure have had a few complications, but overall it sounds like things are going to be good. Do they feel the diabetes will go away when your prednisone dosage gets reduced? I have mild diabetes, no medications, but when my prednisone dose was high, initially, I had to use insulin for a while.
Looking forward to hearing that you are back on your feet, discharged from the hospital, and the problems are resolved,
JK

I also had post transplant diabetes, and took insulin for a while. I never had any indication of diabetes before that, and so it really was a worrisome experience for me until it was explained. As my prednisone levels were lowered, the insulin was no longer needed. I remember that I also had to check my levels with the finger prick for a while after I was home.

@rosemarya Hi Rosemary. I am now experiencing the same as you with the disbetes. I do not take insulin but take two oral medications daily. I have a meter and check my blood twice a day. This was really distressing for me as well. I have never had any underlying disposition to diabetes prior to surgery. The prednisone levels are also the cause for my blood sugar elevation. Im looking forward to the prednisone levels being lowered. Aside from that the pnemonia is slowly healing. Would have made recovery a lot easier without this complication. I made it home though only 1 week after the second surgery. First transplant surgery Nov 28th 2018. 2nd repair surgery Dec 22nd 2018. Came home yesterday Dec 30th. Had blood tests this morning and I'm back for another CT Scan Wed. Blood levels hovering. I really dont think I could handle another surgery so soon.

I hope that your complications will remain in the 2018 year, and that 2019 is a celebration of your continuing and complete recovery.
It sounds good that you home. Are you getting any sleep? How about the back pain?

I think that you are fortunate that you are getting good care! You are not alone with set backs. Have you been following some of the conversations in the Liver Support Group Discussion Group?

@ rosemarya Sleep is still pretty poor but that is mainly due to the pnemonia. It is hard to breathe or catch my brsath at times. I was on oxygen at the hospital. Back pain has receded! Yes I have been reading of setbacks experienced by many others. I find everything very interesting and so informative. I knew there would be setbacks just not how they would manifest in me. I am very fortunate at my level of care. My numbers aren't receding so back to CT Scan tomorrow. All in all I feel pretty good. Happy New Year 🎉