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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)

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@foustr68

Was just diagnosed with this. Have lots of questions. Can anyone help.
Will the medication they gave me help me feel better.
Do I have to take the medication for the rest of my life?
Does changing my diet help?
Are just a few.

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Replies to "Was just diagnosed with this. Have lots of questions. Can anyone help. Will the medication they..."

Hello @foustr68, Welcome to Connect. There is an existing discussion for Primary biliary cholangitis (PBC) where you can meet other members and learn how they are managing PBC. I'm tagging our moderator @ethanmcconkey to see if we can move your post to the following discussion.

> Groups > Transplants > Primary Biliary Cholangitis and Autoimmune Hepatitis
-- https://connect.mayoclinic.org/discussion/primay-biliary-cholagitis-and-autoimmune-hepattitis/

You can also find more information that may help answer some of your questions on the following sites. I'm also tagging @rosemarya who may be able to answer your questions.

Primary biliary cholangitis - Symptoms and causes - Mayo Clinic
-- https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
Primary Biliary Cholangitis - NORD (National Organization for Rare Diseases)
-- https://rarediseases.org/rare-diseases/primary-biliary-cholangitis/

Have you asked your doctor about your question on taking medications and if a change in diet would help?

Hi, @foustr68. I have some experience with a liver disease, and I would like to offer my knowledge and experience as a patient. I can understand how confused you must be right now.
My girlfriend who had Primary Biliary Cholangitis (PBC) took Ursodiol and her PBC remained stable for her lifetime. (She died at 84). She received her original diagnosis from her Gastroenterologist (GI) who monitored her regularly thru routinely scheduled labs. She also had regularly scheduled labs drawn. I wish there was more that I knew about her experience except to say that she led a normal life and always gave me a thumbs-up after her appointments. I had a different liver disease and I took Ursodiol.
What led to this diagnosis? Are you experiencing symptoms now?