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DiscussionPrimary Biliary Cholangitis and Autoimmune Hepatitis
Transplants | Last Active: Oct 3, 2021 | Replies (72)Comment receiving replies
Replies to "Yes her doctor does lab tests every 4 months"
@mahdi123, That is how often my labs were drawn.
In the US, MELD score is used as an indicator for when to evaluate a patient for posible liver transplantation. MELD is an acronym for model for end-stage liver disease, and MELD score is the score provided to patients based on how urgently they need a liver transplant in the next three months. It’s used by hospitals and the government to prioritize allocation of deceased donor livers for transplant. The MELD score can range from 6 (less ill) to 40 (gravely ill). The same MELD score definition and calculation are used by all transplant centers in the U.S. - https://connect.mayoclinic.org/page/transplant/newsfeed-post/the-meld-score-definitions-and-frequently-asked-questions/
Here is a discussion where other members are talking about their 'wait' until they can be referred for a liver transplant. There are many different experiences and things being shared. I tthink that is you read thru the responses you will see that everyone is on a different timeline.
You and your sister are not alone.
@mahdi123, I invite you to read and to participate with questions to anyone:
It's not all about the MELD Score - https://connect.mayoclinic.org/discussion/its-not-all-about-the-meld-score/
Has your sister's doctor talked to you about whether there is a score to measure when your sister will be referred for transplant?