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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)

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@julie3258

I am looking for people who experience autoimmune hepatitis or stage 3 fatty liver disease

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Replies to "I am looking for people who experience autoimmune hepatitis or stage 3 fatty liver disease"

@julie3258, I have experience with liver disease and liver transplant. I am happy that I have been tagged to meet you, and I am available to share any information from my own experience. I successfully transplanted 10 years ago, and my doctors always told me that there are some commonalities with all liver diseases, so even though I didn't have either AIH or fatty liver disease, I am here.
How can I help you?

@julie3258 I did not have hepatitis, but I did have fatty liver, which caused cirrhosis. Once you have cirrhosis, from what I have seen, things are pretty much the same, but different, no matter the cause. I say the same but different because we all tend to have different symptoms. The first recognition that I had something wrong was when I had an HE episode. From that point until I was finally diagnosed with cirrhosis, was almost a year and a half. The hepatologist told me I probably had cirrhosis for about 10 years but it takes a long time before it makes itself known.
If you have any specific questions, please feel free to ask. We are here for you. I wish I was aware of this forum when I was going through so much prior to transplant.
JK