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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)
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@cinnamon215

Hello again, Rosemary. I came back over to read your message again. I was not familiar with vitiligo and researched it a bit. But I was familiar with PSC because my GI first considered it (among other conditions) before he sent me to Vanderbilt in Nashville for a liver biopsy. Your AI experiences have been so drastic, and I am so sorry for all you have been through. I have quite a "collection" of AI diseases now, so I try to learn something new everyday. My doctors have helped me, bless their hearts, but they can't be at my beck and call every time I develop a new symptom! 😉 Since the PBC diagnosis, my experience has been that new symptoms usually turn out to be a new diagnosis. I certainly hope you have not developed additional AI conditions. You have had enough trauma for a lifetime!
Thank you for sharing with us here.

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Replies to "Hello again, Rosemary. I came back over to read your message again. I was not familiar..."
Rosemary, Volunteer Mentor | @rosemarya | Apr 12, 2019

@cinnamon215, Hi, it is good to hear from you. Thanks for checking on me. I am curious about your mention of 'new symptoms' equating with new diagnoisis. What do you mean? I realize that autoimmune diseases often share symptoms, and that is why they are so dicfficult to name.
Since your PBC diagnosis, have you been receiving any treatment or monitoring? If so, you should not feel you are placing them at your beck and call everytime you have a new symptom. Successful treatment requires open communication between you and your provider.

A lesson I learned early on with liver disease was that if a roomfull of people have the samy liver disease, that each one might exhibit different symptoms. Each symptom needs to be dealt with as it appears. Another thing is that all of the different liver diseases do share some common symptoms.

I have no information about research for the safety and use of CBD oil and liver. I urge you to go to only credible resources, and to avoid the 'dot coms' who are promoting a product for a profit.

I commend you for your good practice of being careful of what you put into your body.

What kind of new symptoms have you experienced?

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