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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)

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@rosemarya

@jlsk1974, Primary biliary cholangitis, was previously called primary biliary cirrhosis. So it looks to me like your diagnosis has not changed, however the disease has progessed a little with some scarring since you were first diagnosed. Unfortunately, it is a chronic disease, and this is what it does. I have a friend who has known that she has had it for nearly 20+ years, and she 'just has it' Her only symptoms are tiredness. She is cared for by a GI. She had been taking URSO, but I have not chatted with her recently about it.

Here is one of my favotire resources, because it is an easy read, and easy to locate information with the headings. I want point out the questions that you will want to ask your doctor, and also the questions you should be prepared to answer for your doctor.
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
I am happy that you have come here with your questions. I had a different bile duct disease, and I am here to lend any support that I can.
I look forward to hearing from you.

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Replies to "@jlsk1974, Primary biliary cholangitis, was previously called primary biliary cirrhosis. So it looks to me like..."

I meant to ask you, Rosemary, perhaps you can point me in the right direction. I am hearing more and more about the use of CBD oil for the liver inflammation (etc.) and the good results it gives. I am aware of everything I put in my mouth and filter it through "is this going to hurt me or help me?" I would like to know what the truth is. What research, if any, has been done on the effects on the liver? Thank you.