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Primary Biliary Cholangitis and Autoimmune Hepatitis
Transplants | Last Active: Oct 3, 2021 | Replies (72)Comment receiving replies
Sorry to say quite irritated (But not because of you). It is really getting to me. Just found out on top of everything else my kidneys have shrunk quite much. I had been telling my doctors about the pain in the back where the kidneys are for about a year now. They did not want to address this issue. I am guessing because of the many other health issues I have confuses them. Holding on with much irritation and wanting to lash out. Wish I could afford to move elsewhere. Thank you for listening. Take care. Peach
Replies to "Sorry to say quite irritated (But not because of you). It is really getting to me...."
@peach414144
Hang in there...sometimes our docs dont listen..i have a great relationship with my PCP and can tell when Im getting my point across. I was REAL mad at him last week when he asked me if I was drinking...AST level was up. I pounced on him like a cat on a canary. He laughed and got the message. Also. I think communication with our specialists is difficult because they deal with so many like us. I always make a list on my phone of notes before and after each visit. That way I can go back and show them what I was talking about and when.
Im sorry you had to go through that...make sure you let them know how you feel...in the nicest way..of course..lol
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@peach414144, You have every right to be more than quite irritated. Thank you for feeling trust to share this unfortunate situation here on Mayo Connect. We are here anytime to listen, and "Yes" you can lash out here. We understand.
I was just scrolling thru the Mayo Transplant Facebook and saw this, so I want to share it with you - "Today is the last day of National Kidney Month I hope it gives you some helpful information.
http://bit.ly/2uzoSVb