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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)

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@rosemarya

@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo, an autoimmune skin condition, and that is what caused my doctors to look at possibility of my liver disease also being autoimmune related. I was eventually diagnosed with a different disease that affects the bile ducts, Primary Sclerosing Cholangitis(PSC) and received a successful transplant in 2009.

I especially like the information that @johnbishop shared about Common toxins to avoid (— http://loveyourliver.com.au/common-toxins-to-avoid ) because it is directly related to everyday living. It is my understanding that there is research being done to look at the environmental and chemical toxins.
Since you are new to PBC, I want to share this information about Primary Biliary Cholangitis(PBC) from Mayo Clinic Patient Care & Health Information>Diseases & Conditions. It says that, "Primary biliary cholangitis is considered an autoimmune disease, which means your body's immune system is mistakenly attacking healthy cells and tissue. Researchers think a combination of genetic and environmental factors triggers the disease. It usually develops slowly. Medication can slow liver damage, especially if treatment begins early."
https://www.mayoclinic.org/diseases-conditions/primary-biliary-cholangitis-pbc/symptoms-causes/syc-20376874
I hope that this helps give you a perspective on this disease.

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Replies to "@cinnamon215, I am sorry to hear of your suffering with several autoimmune conditions. I have vitiligo,..."

Thanks for sharing important information

Hello again, Rosemary. I came back over to read your message again. I was not familiar with vitiligo and researched it a bit. But I was familiar with PSC because my GI first considered it (among other conditions) before he sent me to Vanderbilt in Nashville for a liver biopsy. Your AI experiences have been so drastic, and I am so sorry for all you have been through. I have quite a "collection" of AI diseases now, so I try to learn something new everyday. My doctors have helped me, bless their hearts, but they can't be at my beck and call every time I develop a new symptom! 😉 Since the PBC diagnosis, my experience has been that new symptoms usually turn out to be a new diagnosis. I certainly hope you have not developed additional AI conditions. You have had enough trauma for a lifetime!
Thank you for sharing with us here.