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Primary Biliary Cholangitis and Autoimmune Hepatitis

Transplants | Last Active: Oct 3, 2021 | Replies (72)

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@ethanmcconkey

Hi @cinnamon215 you may have noticed that I moved your post to this existing discussion on Primary Biliary Cholangitis, per the request of @johnbishop, in order for you to connect with other members who have similar experiences.

I wanted to introduce you to fellow Connect members, @mahdi123 and @rosemarya as they have had similar experiences to you and may be able to offer you support.

Back to you @cinnamon215 how are your symptoms at this point?

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Replies to "Hi @cinnamon215 you may have noticed that I moved your post to this existing discussion on..."

Thank you for your reply. I am just overwhelmed by the very nature of the question about my symptoms. It has been hard for me to put into words all I am dealing with since I first got sick a few years back. That's the same question that most of my doctors have opened the conversation with at my visits...which brings up another question that I need to jump to...I'm sure you can answer this one. Why do doctors ask something like "So, what brings you in today?" or "How are things going?" like they are a blank slate. This, after having spent a considerable amount of time filling out all the paperwork about my medicine, symptoms, medical history, etc. including the answer to the first question: "What is your chief complaint today?" and he hasn't even glanced at the paperwork. Since I developed all these miserable AI diseases, I don't know which doctor wants to know what, so I end up telling them my list of concerns and symptoms so they can pick and choose which ones they want to address which wastes a lot of valuable time. If I am in the middle of a flare, I tend to just shut down with that question because I can't answer it. With the stress of getting to the appointment and accompanying mental fog, sometimes it is a big ordeal to communicate.