Low TSH - Bumped from doctor to doctor

Posted by babbab @babbab, Dec 15, 2018

I had a total thyroidectomy in July 2013. I have been on both Armour and a combination of Liothyronine and Levothyroxine for the last 6 1/2 years. I have seen at least 6 doctors to help me regulate my medication. I have been pushed around from doctor to doctor. The problem is that no matter how low the medication dosage goes down, my TSH is always abnormal; no doctor wants to deal with me. I need some help.

Interested in more discussions like this? Go to the Diabetes & Endocrine System Support Group.

@babs1234

No. Ive had two surgeries. Im always tried no energy. I cant remember things and its effecting my job. Im in management.

Jump to this post

After my cancerous thyroid removal, I saw an endocrinologist for years, but have always complained of being so tired, maybe because of the diabetes which I manage with a strict diet and Metformin. For years the Endo has said my blood numbers are perfect and I have replied that I am too tired to do anything. Finally she said that my one number has to be low so I don't get more cancer. But the surgeon said I had no cancer cells anywhere a year later when he did some testing. He said I was cured. So why do I have to live on low dose of thyroid pills and feel bad the rest of my life? I had breast cancer years before the thyroid and after radiation was told I was cured after that. I had a lumpectomy. I changed my diet and studied the matter. I buried my stress source in the cemetery and have lived a blessed life the past 12 years. I try to be active and would like to have some energy, or do I just sit around until I die? Of course not! The Endo said not to come back because my AIC is below 7. I guess Medicare won't pay anymore. I just keep planting my garden. That is all I know to do, and my son helps because he loves the potatoes I don't eat after I grow them. Dorisena

REPLY

Before my husband died, he had blood work done locally in the Cleveland Clinic lab here, in cooperation with the local oncologist. So he didn't need to travel to Cleveland to get diagnosed with testing for his cancer.
If I don't get to feeling like a normal person soon, I think I will try to get tested at the local Cleveland Clinic lab because my local Endo dismissed me and my primary doctor has changed to pediatrics and is no specialist in thyroid issues, but he writes my prescriptions at the recommendation of my former Endo.
As hard as I am working on diet and some exercise, I think I could pay if needed, to get the best care available, and not just sit here until death arrives.
That is a pretty boring thought, And my daughter says it could be another twenty years. I don't plan to be warehoused until then. Dorisena

REPLY

Although I've had thyroid disease (Graves) for over 25 years, I just recently went through a partial thyroidectomy--so I'm just starting on this "new" journey with my endocrine system. All of these years and I recently learned that taking taking anything with Biotin in it can skew test results. It has benefits--so it's not that you can't take it--but make sure that you stop taking it a few days before you have your blood tests drawn. Look at any vitamins or supplements you take to be sure that you hold them before blood work. Doctors can only make good dosing decisions if they have accurate blood work. This may not apply to you--but is info I wish I had over the years--because it's a common vitamin in the B vitamin class. Hope it helps.

REPLY
@contentandwell

@babbab I can feel your frustration. I went through that before getting my diagnosis of non-alcoholic cirrhosis.
You say you have been to many doctors, so I presume at least one is an endocrinologist. Are you close at all to a city with a major medical center? I think that may be your last resort. I hope you can finally find an answer to your thyroid problems.
JK

Jump to this post

what should a normal diagnosis be mine is 0.8 taking 200 mg meds a day Nicole

REPLY
Please sign in or register to post a reply.