Low TSH - Bumped from doctor to doctor

Posted by babbab @babbab, Dec 15, 2018

I had a total thyroidectomy in July 2013. I have been on both Armour and a combination of Liothyronine and Levothyroxine for the last 6 1/2 years. I have seen at least 6 doctors to help me regulate my medication. I have been pushed around from doctor to doctor. The problem is that no matter how low the medication dosage goes down, my TSH is always abnormal; no doctor wants to deal with me. I need some help.

Although I've had thyroid disease (Graves) for over 25 years, I just recently went through a partial thyroidectomy–so I'm just starting on this "new" journey with my endocrine system. All of these years and I recently learned that taking taking anything with Biotin in it can skew test results. It has benefits–so it's not that you can't take it–but make sure that you stop taking it a few days before you have your blood tests drawn. Look at any vitamins or supplements you take to be sure that you hold them before blood work. Doctors can only make good dosing decisions if they have accurate blood work. This may not apply to you–but is info I wish I had over the years–because it's a common vitamin in the B vitamin class. Hope it helps.


@babbab I can feel your frustration. I went through that before getting my diagnosis of non-alcoholic cirrhosis.
You say you have been to many doctors, so I presume at least one is an endocrinologist. Are you close at all to a city with a major medical center? I think that may be your last resort. I hope you can finally find an answer to your thyroid problems.

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what should a normal diagnosis be mine is 0.8 taking 200 mg meds a day Nicole

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