Came here to Mayo Jacksonville in May from Oregon for lung transplant evaluation after 5 weeks was denied. My next steps were to explore LVRS surgery and/or Zephyr valves. Was evaluated 3 weeks ago, found a 7.7mm nodule in my right middle lobe on a high resolution CT scan that was not there a month ago.
Dr. Makey and Dr. Bussy wanted to do a biopsy. Dr. Bussy did the biopsy, results came back as noncancerous. Great news
Unfortunately the valves are on hold because after the biopsy I had a pneumothorax.
In the hospital for a week with a tube in the chest.
Just got out of Mayo building 3 hours ago
Can not fly home to Oregon for at least another week because of the pneumothorax. Want to start pulmonary rehab here. If I can start and complete a 12 week program I can get the valves as I do qualify but just delayed.
This place is absolutely amazing. Everyone of my extensive medical team is the best in the world. That's why I travel 2500 miles each way to be hear.