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What happens after C.Difficile?
I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.
I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.
So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.
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Hello @5chances and welcome to Mayo Clinic Connect. I can see you are looking for suggestions on keeping the bacteria at bay.
You will see I have moved your post to this existing discussion on C. Diff so you can connect with other members with C. Diff such as @ngorman25 @dilly69 and @losthope .
How are you doing adjusting to your Rx medications?
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1 ReactionThanks.
Yes, like so many others I’m trying anything I can to have this infection wiped out. Just finished vancomycin two days ago and worried about relapse.
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1 ReactionHaving trouble figuring out foods. I’ve looked at low FODMOP foods yet the list has all sorts of high carb foods. I’m vegetarian and kind of struggling here on what to eat. I’ve been eating sweet potatoes, grapes, boiled eggs, oatmeal and bananas almost daily. Mashed potatoes and pasta I also see are a no no. I’m taking Florastor and Renew Life 200billion CFU but then someone told me that’s not a good probiotic to start with (RL) because of “die off”?
Help!
I had C. Diff, was on Vancomycin for ten days, it came back and took Vancomycin again and it didn’t help. Then they put me on
Dificd (Fidaxomicin made by Johnson & Johnson). For ten days. With insurance it was $875. But it worked and I haven’t had a relapse.
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1 ReactionThanks for the info. Did you change your diet. My biggest problem is to put it gently is from 3 violent episodes, my hemorrhoids are so bad. Anyone out there still have a burning feeling after going? Got 3 more days of meds. God, l hope it's over
I went through 4 bouts of Cdiff before taking Dificid. My insurance wouldn't approve paying for part of it until I had taken Vancomycin which didn't work for me. I even took the pulse and taper Vanco for 6 weeks and a couple weeks after ending that, I had my 4th bout of Cdiff. The Dificid was worth every penny. It was $5,000 for 20 pills (10 days) and my ins. paid for a little over $4,000. That was in 2018.
If Cdiff returns after you complete the meds, I would suggest you request Dificid. I took Flagyl with my first Cdiff infection, Vanco for 10 days with the second, Vanco pulse and taper for 5 or 6 weeks with the third bout, and FINALLY with the 4th bout in six months, they prescribed Dificid which worked. It's expensive and my insurance wouldn't approve until after trying Vancomycin which is much cheaper. But I was desperate and had decided if Dificid didn't work, I was having a fecal transplant.
Thanks, talking with gastroenterologist on weds., will tell her this. Heard good things about the fecal transplants
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1 ReactionHow soon did it come back after vanco? I’m a walking ball of nerves at 13 days off.
I still have a slight burning when going.