What happens after C.Difficile?

Posted by dn22 @dn22, Dec 6, 2018

I got C.diff back in October (early to mid). I had taken clindamycin for BV and it didn't react well for me. I went into the ER for intense pain, bloating, and diarrhea. They found out I had a severe case of colitis, my entire bowel system was extremely inflamed. But they didn't know what type of colitis it was until my 3rd day there. Then they did the colonoscopy, endoscopy, and biopsy. So they treated me with antibiotics. Sent me home with more antibiotics. And after finishing them, and giving it a few days I felt better.

I was still more aware of my bowels, which is saying something since I have IBS already. But other than awareness, and maybe some tenderness in a way, it was normal. Then Thanksgiving came, and I ate what my family made. I had immediate diarrhea and pain. I thought it was the dairy, bc I forgot to start taking my IBS meds again. They had me stop taking them for awhile after being diagnosed with c.diff. Then I tried the food the next day, after taking my IBS meds. Same issues.

So I decided no more thanksgiving food. But the pain, bloating, twisting feeling, and pooping didn't stop. And I would get the urge, but when I went to go, it'd be a lot of gas, that was hard put to come up. When I would poop, the stool itself was very hard, and not a lot would come out.
My mother bought me stool softener. It made the stool less dry and sandpaper-like. But I still wasn't getting any relief.
So last Friday she gave me some of her Super Colon Cleanse (about 3/4-5/8 of a scoop/serving) mixed with Metamucil in a water bottle. And I drunk half the mixture. I still haven't stopped pooping. I'm pooping for hours again, just like with c.diff. No blood this time though. And the stool is pellet like.
I keep waking up to poop, or try to poop. I can't eat anything. Especially not carbs or dairy. I feel like I'm dying, but in a very different way than when I had c.diff.
I don't know what's happening. If I should go to the hospital or not. Or if c.diff has different symptoms the 2nd time around. Or if, because it was such a severe case, that my bowels were damaged somehow. I'm really just not all right, and idk what to do.

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I am in the same situation. I’m on my 3rd relapse. I’m at 85 pounds. I’m getting desperate. I’m on my 4th round of different gut meds. I sure hope next week when these finish it doesn’t come back.

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See a your gastro Dr. you need another culture. C.diff. is hard to kill. It took 3 rounds of different antibiotics to get rid of it. The 2 x times it came back the symptoms were a little different. Or you are negative and your gut needs to heal.

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@sue6408

See a your gastro Dr. you need another culture. C.diff. is hard to kill. It took 3 rounds of different antibiotics to get rid of it. The 2 x times it came back the symptoms were a little different. Or you are negative and your gut needs to heal.

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@I am also in treatment for cdiff due to clindamycin. I had been initially diagnosed with diverticulitis and treated with flagyl and cipro . I just got worse 12 to 14 bowel movements a day. I lost 22 pounds in2 months. I was later diagnosed with cdiff and treated with vancomycin. I start to get better then a relapse. I guess my question is has anyone gotten better without relapse on vancomycin. How long did it take. I am losing weight everyday and am still on vancomycin and probiotics This is a life changing illness. @

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@losthope

@I am also in treatment for cdiff due to clindamycin. I had been initially diagnosed with diverticulitis and treated with flagyl and cipro . I just got worse 12 to 14 bowel movements a day. I lost 22 pounds in2 months. I was later diagnosed with cdiff and treated with vancomycin. I start to get better then a relapse. I guess my question is has anyone gotten better without relapse on vancomycin. How long did it take. I am losing weight everyday and am still on vancomycin and probiotics This is a life changing illness. @

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Please see my other posts about this. It is not just taking antibiotics but also preventing relapses through eating proper diet post antibiotics that does not produce inflammation or allows the bad bacteria to return. I took four rounds of antibiotics and it was not until I changed my diet that I stopped relapsing. Can’t emphasize this enough. Since I changed my diet, I have gained seven of the twenty pounds I lost in three months and (knock on wood) have not experienced diarrhea in twenty two days. I could see improvement within a week of starting to work with a nutritionist. I was clueless and so was my GI doctor.

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@guthealth

Please see my other posts about this. It is not just taking antibiotics but also preventing relapses through eating proper diet post antibiotics that does not produce inflammation or allows the bad bacteria to return. I took four rounds of antibiotics and it was not until I changed my diet that I stopped relapsing. Can’t emphasize this enough. Since I changed my diet, I have gained seven of the twenty pounds I lost in three months and (knock on wood) have not experienced diarrhea in twenty two days. I could see improvement within a week of starting to work with a nutritionist. I was clueless and so was my GI doctor.

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By the way, Clindymycin was the antibiotic that basically destroyed my intestinal flora. I would caution everyone to read about it before they take it.

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You are not supposed to eat carbs or dairy after CDiff.

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@losthope

@I am also in treatment for cdiff due to clindamycin. I had been initially diagnosed with diverticulitis and treated with flagyl and cipro . I just got worse 12 to 14 bowel movements a day. I lost 22 pounds in2 months. I was later diagnosed with cdiff and treated with vancomycin. I start to get better then a relapse. I guess my question is has anyone gotten better without relapse on vancomycin. How long did it take. I am losing weight everyday and am still on vancomycin and probiotics This is a life changing illness. @

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I am on my last round of vancomycin. I had 3 rounds of Flagyl. I keep losing weight too. I’m down to 85. I was told to get a nutritionist to help with a correct died. Also a shake called Elecare. I had at least 30-40 BM’ in one night.
Gut health on here told me that lots of the food we have been eating for Cdiff are bad for us. I am desperate to get well. I’ll try 'anything. Also some suggested a probiotic called Flostar (spelling ).

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@sandyabbey

I am on my last round of vancomycin. I had 3 rounds of Flagyl. I keep losing weight too. I’m down to 85. I was told to get a nutritionist to help with a correct died. Also a shake called Elecare. I had at least 30-40 BM’ in one night.
Gut health on here told me that lots of the food we have been eating for Cdiff are bad for us. I am desperate to get well. I’ll try 'anything. Also some suggested a probiotic called Flostar (spelling ).

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I was told by my gastro to eat massed potatoes & oatmeal. Things like that. Also eggs. I guess this is all wrong. I have to get the right diet.

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@sandyabbey

I was told by my gastro to eat massed potatoes & oatmeal. Things like that. Also eggs. I guess this is all wrong. I have to get the right diet.

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Eggs might be ok. Not so sure of mashed potatoes and oatmeal at first.

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@sandyabbey

I am in the same situation. I’m on my 3rd relapse. I’m at 85 pounds. I’m getting desperate. I’m on my 4th round of different gut meds. I sure hope next week when these finish it doesn’t come back.

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mayo clinic does fecal microbial transplants after 3 occurrences of c. dif. Has a good cure rate.

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