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DiscussionPolycythemia Vera: Just been diagnosed
Blood Cancers & Disorders | Last Active: 17 hours ago | Replies (399)Comment receiving replies
Replies to "Hi, Just diagnosed with Polycythemia Vera on Friday. Negative JAK2 test, but other genetic changes noted..."
@gjb1 - My EPO is high as well. In my case the high EPO makes sense, given my hematocrit is anemic. I'm still confused by my PV diagnosis, given now the only criteria I meet is that I have the JAK2 mutation. Feels a bit to me like an "eeny-meeny-miney-mo" diagnosis. It could be possible that I'm in early stage PV, but, currently there is no bone marrow biopsy to confirm that, and two of the bloodwork parameters (hematocrit/hemoglobin and EPO levels) are contradictory to the diagnostic criteria.