Liver disease itching: What helps?

@gaylea1, I am going to make a nonmedical guess that when your bile duct issues are resolved, your taste will return to normal. I have my fingers crossed🤞.

As far as swimming etc, here is what I found in a handout after my transplant about Infection Prevention after Transplant. It is a typed page, and there is no quoted source. Here is what it says about water:
-Avoid use of hot tubs, especially public ones. Swimming in pools or the ocean is okay as long a you do not have any open cuts or sores. Do not swallow the water. Wear water shoes or sandals when walking along the beach or wading into water from the shore.
-Do not wade into flood waters or murky lakes and streams.

I am happy that @contentandwell has provided excellent information from her own experience of what works for her. I am not a water person.

I wonder if anyone else has any water related experience to share? What have you been told? What works for you?

Yes. I have

@melhem, I see that you are a new member and I want to extend a Welcome to Mayo Clinic Connect.
What brings you to this discussion about liver disease itching? Would you care to share some information about yourself so that I can better communicate with you?

I am a nurse and I have experience in herbal medicine for more than 15 years

HI,Manuka Honey Cream

My doctor prescribed Cholestyramine 2X/day for extreme back and abdomenal itching. At night when my feet and legs itch, I take hydroOXYmine PAM. Together they have helped a lot. I went to dermatologist too, but she the prescribed creams that did nothing. For reference, I was diagnosed with Cirrhosis 2 years ago and have no further symptoms since then. If you get the cholestyramine, I suggest you take it with OJ (it's a powder). Good luck!

Hi, @skolotilin. When I had to take Cholestyramine with my itching with liver failure I think that I put it in orange juice, too.
Do you still take it? or need the lotions?

Yes, I still use it. When I’ve stopped taking it the itching gets worse, so I continue to take it. I wonder if I’ll ever be able to stop itching. Plus, at night, My itch is extreme and all over. Legs, feet, arms, everywhere!

@skolotilin I'm so sorry you're going through this 😔 I remember this too well. I went through this for 2 years before my transplant. I thought it would never end. Every night...no sleep, scratching until I bled. Everywhere on my body including my eyebrows, scalp, eyelids, fingers, palms, soles of my feet, toes, scalp and every other inch. I tried everything. The meds the doctors gave me never helped nor did baths, creams, antihistimines, special sheets. It did finally end after my transplant but now 1 1/2 years later its started up again but modertately. It will get better you just have to hang in there. Easy to say I know, but it doesn't last forever. I'm sorry I can't be of more help but I can empathize and share in what you're going through.

Thank you so much for your caring reply. I pray I never get as bad as you describe. The funny thing is that since my diagnosis two years ago, my liver has been stable, even improved. I thought I was going crazy when the itching began! Thanks again and be well.