Has anyone experienced internal vibrations?

Great question, yes I plan to bring it up to them. Having had it happen once before and it naturally seem to go away when I stopped focusing on it and just embrace what it is for the time being, it is somewhat 'comforting' knowing it happened once before with 0 other symptoms and literally go away when I opened my eyes and woke up more.

The other interesting thing is 2 years ago it happened at the exact same time of year as well. Part of me feels like it's a combination of a lot of different things going on. The 'triggered event' was the icing on the cake, but a lot of stress at work, the long, cold winter blues, COVID this year living in a high risk household isolated from a lot of friends and family and not able to get out and do things. But I think you're spot on, some sort of 'trigger' seems to be the onset reason. If I've learned nothing else over the last couple of years now dealing with this a second time is that the mind is a very, very fragile thing and the sub conscious can be very scary when something goes slightly off track. A couple weeks of garbage sleep and your mind tends to wander to the worst and it's a really unfortunate downward spiral that can impact all aspects of your life and eventually actually make your health worse from ineffective/not enough sleep. My newest strategy is going to try and 'embrace' it and pump myself up to go to bed and tell myself I'm ready for it to come and beat it. If I wake up and it happens when I try to go back to sleep, rather than toss and turn and worry and end up away for an hour or two, I'm going to immediately sit up and read or do some sudoku's until I'm tired again and hopefully naturally fall back asleep. I've also found it fascinating reading a lot about sleep paralysis and how many believe these can be caused by your brain being 'tricked' thinking you're still asleep when you're actually awake and those internal tremors are normal during sleep. They also use that as an explanation as to why it goes away in the snap of a finger when you open your eyes and wake up more. My hope is to alert my brain I'm awake, reset it, get tired by reading, then go back to sleep naturally. I hope your continue to find some relief and things that help alleviate your symptoms.

Hey, I've been experiencing these internal tremors for just over a week now. Although i did experience them one night about a month ago, i thought my bed was shaking, went to see if the washing machine was on downstairs. Then i didn't experience it again until about 9 days ago. If i stop moving i can feel it, especially if im sitting/lying. Do you only feel them when you're sleeping? What about if you sit on the sofa and hold a cushion across your torso tight? I can also feel it then. Really hoping it goes away like the first time. I've been fairly anxious what with covid and a break up a while back that I've been thinking about, but i was never really conscious of my anxiety. Its only this last week that im anxious 24/7 because i dont want to feel the tremors/ worried it wont go away

Hi There, I've posted somewhere above and just seen your message. Have had internal Vibrations for over 7 months now and they have started to subside somewhat. My story > 60 years old. Exercise daily but a lil overweight. Non smoker on no meds. My personal journey included a lot of research. The vibrations can be from Lyme disease, Parkinson's, Essential Tremors, MS, heart blockages, and my personal favorite is MENOPAUSE - I really think this is my problem along with stress mixed in there too. MY suggestion is to go through every symptom you have and write it down and start researching. There are sooooo many things that can cause Internal Vibrations- Even tumors, vitamin deficiency, diabetes amongst the ton. When I went to my doctor and told him ....he actually laughed and told me that maybe i was nuts......Having IV has been absolutely terrifying! Mine Started once in a while ....thought a truck drove down the road and my bed /house shook which made if feel like my whole body was vibrating, then they happened all the time even sometimes during the day. Most recent down mostly in my legs. FOR ME- I'm gonna try to be as healthy as i can and do my due diligence to get all the regular screenings done and eliminate the most abviouse and most dangerous things it could be and move on with my life! I"m so grateful for everyone that has shared their personal stories because it helps tremendously....and we know that we are NOT ALONE!! f I can be any more of assistance feel free to reach out. Best of Luck! NOTE: I have been using CBD (no THC) From Medterra and Montel Williams) to help fall asleep.

Hello @mkins8 and welcome to Mayo Clinic Connect. I am sure this has been very concerning for you. Interesting you mention and acknowledge and increase of stress/anxiety. That has been a fairly common thread among members who have shared their story. I am not a provider but am wondering if you have thought to address your stress/anxiety, and if so, what have you done so far?

@mkins8 - yeah I only feel them at night. It also appears to have a direct link to adrenaline for me. My wife and I made love before going to sleep, and it was the first and only time it happened to me without first falling asleep normally and then being awoken in the middle of the night. That really got me thinking/wondering if the adrenaline release really magnified the anxiety and threw whatever neurological 'stuff' out of whack in the same way of waking up in the middle of the night. They say adrenaline is what wakes you up in the morning naturally but I've read from other doctors that the internal vibration feeling could be your brain not realizing you're awake and either a normal sleep feeling that you normally don't realize because you're asleep, or adrenaline related to it waking you up. I feel like they'll go away once the body/mind somehow go back into a normal rhythm. Once it gets knocked out of whack though, there's no 'easy' way to determine when that may be. I honestly felt over the last several days I was extremely happy, in good spirits, not worrying about anything, but it seems whatever it is, is rooted in my subconscious or just hasn't been able to get me neurologically back in a normal state.

It’s important to add BFS/CBFS to the conditions that cause the vibrations, since it is far less detrimental than some of the ones you listed. While those that you list do/can cause fasciculating, BFS is more likely than most.

For those new here that don’t feel like searching my history, the elevator speech of what I’m going through is: started internally vibrating when falling asleep in Jan 2020 after feeling very ill for 2 weeks. After two months or so, the sleep-only vibrations started happening while awake and attacking my calves the worst. After that the sleeping vibrations minimized and moved almost full time to vibrations and muscle twitches all over while awake. Cramping then began and walking was not easy.

In those next months, I saw about 20 doctors including two of the country’s strongest Neuro teams (Jefferson in Philly and Hopkins in Baltimore) and had every possible test except COVID interrupted the planned skin punch biopsy to look for SFN, and a lumbar puncture to look for rare diseases. Ended up receiving three diagnoses of BFS.

Since then, the symptoms come and go in intensity and presentation, but the cramping is much more mild, and I am able to go about life for the most part. I am back to being able to walk 3-7 miles a day to golf, or go ski, etc. It’s certainly not as easy as it was before thus, but it doesn’t stop me. Generally, the worst vibrating and fasciculations now occur when I’m at rest (but awake), particularly after exercise. Basically 75% of the time, some muscle somewhere on my body is fasciculating an vibrating. Just while writing that sentence it hit my right scapula and my left thigh.

I’ve been on 3x300mg gabapentin for nearly year to calm the erroneous signals after trying and failing Cymbalta and some other stronger Rx’s with nasty side effects. Not sure how much the neurontin helps but no side effects for me at all, so I have no plans to stop.

It will always stick in my mind, what the Hopkins neuro told me. She said “we know so very little about BFS that it could easily be another 20 years before we really understand it. All we know is sort of how to try and deal with it through some Rx’s and appropriate exercise.” This is one of the reasons I tell everyone doctor I meet my whole story in hopes that it sparks something to happen sooner to help those of us suffering. I’d gladly toss myself into some research pool if one ever became available.

Am not sure if on correct group... but just had teleconference with neurologist... have had p.n. since 2016 and last few months strong shaking inside not visibile outside. He said Essential Tremors. Found out yesterday low on Vit.D and he said a bit low on B.12. I am not on meds for p.n. as have so many other issues going on and reactions to meds.... so now will be searching for how to cope with this shaking inside... it doesnt hurt but it sure is horrible and getting longer and stronger each day... am reading your comments, but cant take it all in at once, thanks for sharing.....j.

@lacy2Have you looked into these Vitamins? My Dead low on my blood test so Dr told me to get D3I take 5000 mg a day blood work is fine now I take a multi vitamin,mineral a day For me this has helped me with fibromyalgia especially

@lacey2- a positive to pull from this is that your Neurologist is addressing the root, rather than prescribing you a bandaid, that would further more cause vitamin depletion. B12 and Vit D, play an important role in nerve transmission and pain sensitivity. Overly prescribed medications such as Antibiotics and Antidepressants inhibit vitamin absorption greatly, as well as cause many other side effects. Start with Vit/Minerals to aid in body healing. Optimal Nutrition and hydration is key. I’m not saying it’s the cure all or will solve everything, but food is medicine in aiding the body in repair.