Botox for migraines side effects

Hello, I'm interested if anyone can give me any incite on getting botox injections for headaches? I'm very nervous going forward with botox by looking at the previous comments and because there have been no updated comments for quite a while. I've had a allergic reaction to Ajovy and Emovig. Can anyone help me? Thank you

@cindyhas123 I tried Botox a few years ago for my head pain. It didn’t work for me. After going to the Mayo in Rochester they figured out I had 2 different types of neuralgia pain. I get 3 steroid shots in my head every 3 months. That works for me. They’ve asked if I’d want to ever try Botox again. I emphatically said no way. It didn’t work for me before, why would I think it would work now.
Of course medicine can change a lot in a few years. But, they haven’t presented me with any evidence that Botox would be better than what I’m presently doing. Who knows, maybe my current treatment will quit working and I’ll have to rethink my options.
Hope you can find some answers.

Hi. My experience receiving botox injections, every 3 months, for migraines has been a positive one. It took 2-3 treatments before noticing a benefit. Those final 4 weeks prior to next dose is usually a doozy. I know when I'm due. I also have neuropathy in head, neck, shoulders and I believe botox helps this as well.

@cindyhas123 I have had boxtox for TMJ which causes ferocious headaches. My experience has been a positive one. At his point insurance will not pay when botox is administered for headaches due to TMJ. Hoping this will change. I am allergic to all steroids.
Keep in mind we are all different when it comes to medications. Also, oft the positive experiences are not what we hear about. Hope this helps.

I have usedBotox for a number of years now with very good success, most of the time. Occasionally, my body seems to not respond to one of the rounds of treatment. Initially, I did not get results from the shots but I was told by some people who had success that it took a little while for it to work, so I continued to get the treatments and by the third round of Botox, my migraines dropped in half. They have now dropped by 2/3 generally. Good luck with your decision! I don’t like the shots, but I do like the results.

I have had Botox injections for headaches about 2 months ago, ever since then I too have had the same after effects as John in 2019, plus sessions of over heating from top to toe. How long does this take to wear off ? I am getting quite concerned

Hi @maldetete, welcome to Mayo Clinic Connect.
i'm tagging @johnetteg to make sure he sees your message and hopefully will return to share his experience about how long it takes for after effects of botox to wear off for him.

Maldetete, did you report these side effects to your doctor?

maldetete, @johnetteg, If you look back on this thread you will find that I had similar problems. When I did it two years ago the assured me there were hardly any side effects. It was 10 times worse than my migraines or headaches, was to sure what they were. Anyway I had severe headaches, fatigue, balance, brain fog and really not able to operate on my normal level!
During my journey through Lyme Disease/Fibromyalgia I have never had anything affect me like the Botox injections.
A WARNING TO ANYONE WHO MAY CONSIDER BOTOX TO BE VERY CAREFUL!
AS COLLEEN SAYS LET YOUR DOCTOR KNOW IMMEDIATELY!!
Sundance(RB)

Good morning, Yes, had a discussion with the Pain Management consultant who stated that what I was experiencing wasn't caused by Botox and I discussed with my G.P. who carried out blood tests which came back normal. In fact two days ago I called him again feeling quite unwell with all the symptoms of an imminent heart attack. I ended up in A&E where I had extensive tests nothing indicating heart problems, I did however have a blood pressure of 164 which is incredibly high for me I am usually around 128. Thank you so much for taking the time to contact me.

Thank you so much for replying Sundance. One question though - how long did it take for the side effects to wear off?