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Pain pump, I have one, how about one for you?
I have had an implanted pain pump in my abdomen for about 18 months. It is a miracle. I get a total of 4.764 mgs. of Dilaudid, If I administer all of the 10 extra micro does I can have in 24 hours. If I don't use those extra doses I get 2.74 mgs. over 24 hours. The effect is 300 times more effective than if I took the same dose orally. I go to my doctors office every 3 months to have the pump refilled. I'm there for about 15 minutes. The actual process of refilling the pump takes no more than 5 minutes and is painless. No prescriptions to worry about, no one wondering if I'm misusing or selling my pain meds, no one making me feel like a drug addict or a criminal. In our current climate this is even more important than it was two years ago. Many Doctors want nothing to do with pain patients or writing scripts for pain meds. I know many of you have been there. This method is especially good for back issues as the drug is delivered via a catheter which runs up my spin. Yes, I still have pain but it's pain I can live with. If your Doctor doesn't know about this or doesn't want to do it contact a pain clinic. The Doctor who put mine in is a Neurosurgeon. If you have any questions please respond.
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Another thing to ask your pain management or integrative pain specialist to try is ketamine troches and oxytocin troches. They desolve under your tongue. They work together but you can also take them separately. I find that they work best together. You take the oxytocin and then wait 30 min. before taking the ketamine. Unfortunately, they don't work in pill form because the oxytocin cannot survive stomach acid. It's also an opioid alternative but is still a controlled substance. It is very effective and is actually the best pain relief I've had in many years! I am currently considering a ketamine infusion. Hope this might help someone!
Ok perfect, getting a referral there. Wanted to know the doctor you used. Is he strict or does he kind of let you give your opinion on what you think would work. The doctor I saw here said it only works if you get off all opiods for months prior to the trial. There is no way in hell. I have a spinal cord stimulator so I'm sure it's kind of the same hoops right. Me talking eval, trial ect. If you dont mind how did they do your trial, did they make you quit your pain meds prior and were you hospitalized for the trial or just given the injection to see how much it helped. The guy here was just going to inject morphine in my intrathecal space and I would just sit there 3 hours. Does that doctor also take care of your oral medications?
I havent heard of that disorder so it must be kind of rare because I was a neuro spine nurse and I research all the time and am in nurse practitioner school and we just covered the nervous system. I'm so sorry to hear about your suffering, I too am under the label "failed back surgery". Who the heck that had had their spine touched isn't under that umbrella? Haha sad face :/
I WENT TO HOLY NAME IN HACKENSACK, NJ. FROM WHAT I HEAR UNIVERSITY OF MINN. IS A GOOD HOSPITAL BUT DO RESEARCH ON YOUR DR AND FIND OUT HOW MANY PUMP IMPLANTS HAS DR. DONE. GOOD LUCK.
I don't remember the entire process but I believe I saw a neuropsychologist or neuro psychiatrist as one of the first steps. No they did not make me stop taking medications prior to the trial. This all took place in 2016 before the opioid Hysteria grabbed a hold of the medical community. Yes doctor Park manages my oral medications which are minimal to say the least and our continued at least in my case as a perceived placebo. Whatever the process was I didn't find it overly evasive or too time consuming. You start by getting an appointment at the pain clinic, it might help to let them know you're not looking for a doctor to prescribe opioids that you're interested solely in the pain pump and or stimulator.
HELLO, THANK YOU SO MUCH!! ADHESIVE ARACHNOIDITIS IS ALSO CALLED A.A. EAISER TO WRITE. IT IS CAUSED BY SPINE SURGEONS, NEUROSURGEONS, TEARING OF THE DURA, EPIDURAL'S, AND MORE. THEIR DIAGNOSIS TO THEIR PATIENTS, FAILED BACK SURGERY. IT STARTED IN 2008. I WAS NIEVE, UNEDUCATED, NO RESEARCH BEFORE MY LAMINECTOMY. HE CLAIMED I HAD SPINAL STENOSIS! I LATER FOUND OUT WITH SPINAL STENOSIS SITTING DOWN HELPS. IT THAT NEVER HELPED ME! I DID NOT ASK WHY. HE REMOVED, S-1 L-2 L-3 L-4 L-5 NO FUSION. FOR PATIENTS PRYER TO SURGERY YOU ARE SUPPOSED TO SEE THE SURGEON IN THE HOLDING AREA, NOT ALL BUT MOST IN THE OR, RECOVERY. I DID NOT. EVERY TIME I HAD A PROCEDURE I BECAME WORSE. TO MAKE IT SHORT. LUMBAR SPINE, SCAR TISSUE IS STUCK AROUND THE NERVES WHICH CAUSES DEBILITATING PAIN. MY HANDS, LEGS, ARE JUMP AT TIMES FROM NERVES. SITTING, STANDING, BENDING ETC IS PAINFUL. DON'T DRIVE ANYMORE. LIFE AS I NEW IT IS GONE. I HAVE TRIED TO GO TO THE SENATE, CONGRESS, TO PASS A BILL THAT PATIENTS MUST BE TOLD POSSIBILITIES. I AM NOT SAYING IT WILL HAPPENED TO EVERYONE AT ALL. INFORMATION ABOUT A.A. IS ON THE INTERNET HERE AND IN EUROPE. MAY I SUGGEST BEFORE SURGERY BRING UP ADHESIVE ARACHNOIDITIS. LET THE MANY ARROGANT NEUROSURGEONS KNOW THAT YOU ARE AWARE OF A.A. THEY "DO" KNOW WHAT IS IS! I HAVE A WONDERFUL PAIN MANAGEMENT/ ANESTHESIOLOGIST. STARTED ME ON SOMETHING NEW FOR PAIN I JUST STARTED. MY SITUATION IS VERY COMPLEXED. MY SPINE CAN NOT BE TOUCH ANYMORE WHICH I WOULD NEVER DO ANYWAY. ALL IM SAY IS TO DO YOUR HOMEWORK, ASK QUESTIONS. I DID NOT.
I HAD TO RESEARCH ON MY OWN. NOT ONE DR. TOLD ME THEY HEARD OF IT! I SPEAKING NEUROSURGEONS, SURGEONS.
Ok sounds great thank you for the tip, have a great day!!
Ok sounds good, thank you so much!!
Hello @kimspr3 - I thought you may also be interested in a conversation with other members on adhesive arachnoiditis, https://connect.mayoclinic.org/discussion/any-adhesive-arachnoiditis-members-here/