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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@rosemarya

@stella25, I am feeling such joy in hearing about your son. When I was diagnosed with PSC, my GI said that patients with PSC generally do well after transplant because they know far in advance and can begin right away to make healthy living adjustments. I don't know if that is scientific, but it sure worked for me.
I ask you to tell your son that naps are good, and to listen to his body because it will tell him when he is doing too much. I asked one of my transplant docs at my 10 year anniversary, what I needed to do to live another 10 years. His reply: No alcohol. Take meds. Get labs.

Stella, You are most definitely wanted and needed here on Connect. As a caregiver and a mother, you have a unique experience which will benefit others. You don't need to limit your messages to the Liver discussions. Words of hope and encouragement are always welcome.
When things calm down for you, I want you to consider sharing your story as a caregiver in: Organ Donation and Transplant: What is Your story? https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/

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@rosemarya Rosemary, I agree 110% with your doctors advice! Dan has followed his doctors orders since his PSC diagnosis & has vowed to take care of his new liver. He knows & appreciates just what a blessing it is. Thank you for directing me to the What Is Your Story? link. I will definitely consider sharing my story. Sometimes I find it almost hard to believe. Surely, it must be a dream:-) My story, like so many others, is one of faith, hope & love!! xoxo