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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@rosemarya Thank you for inquiring about my son, Dan!! Actually, the spouse of a coworker to my husband had PBC & underwent transplant. I know the 2 diseases are different but the couple took Dan under their wings & helped us prepare for transplant as the husband was transplanted at the same center as Dan. We consider them family:-) We call Dan our MiracleMan. He feels good & looks great! His recovery has been beyond amazing. He is doing everything on his own. He has been staying with us for the past 6 weeks as we are his caregivers. He has gotten the ok from his transplant team to return to his own place this weekend. I'll be a bit sad when he leaves but I am so HAPPY he will be able to resume his life. I'm not going anywhere as I will continue to participate in this support group. This group has been a blessing to me & my family. Hopefully I can offer some insight to those in need. God bless!!!
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@stella25, I am feeling such joy in hearing about your son. When I was diagnosed with PSC, my GI said that patients with PSC generally do well after transplant because they know far in advance and can begin right away to make healthy living adjustments. I don't know if that is scientific, but it sure worked for me.
I ask you to tell your son that naps are good, and to listen to his body because it will tell him when he is doing too much. I asked one of my transplant docs at my 10 year anniversary, what I needed to do to live another 10 years. His reply: No alcohol. Take meds. Get labs.
Stella, You are most definitely wanted and needed here on Connect. As a caregiver and a mother, you have a unique experience which will benefit others. You don't need to limit your messages to the Liver discussions. Words of hope and encouragement are always welcome.
When things calm down for you, I want you to consider sharing your story as a caregiver in: Organ Donation and Transplant: What is Your story? https://connect.mayoclinic.org/discussion/organ-donation-and-transplant-what-is-your-story/