Not sure were to start so I’ll just jump in. I’m Mike 46 yrs old and live in KS. I had my colon removed in 2016 and now have a pouch due to UC. I was diagnosed with PSC in 2008 but really started showing symptoms about two years ago and was referred to Mayo in Rochester. Someone here mentioned Dr. Poterucha, who is also my lead. I have been blessed to have a living donor and through her telling me we are targeting a May 22nd transplant. I haven’t heard this from Mayo yet though. This leads me to my questions.

1. How soon do they usually let one know when they are scheduling the surgery?
2. With Covid restrictions to no visitors, would it be more beneficial to have my primary caregiver there pre or post surgery (more in terms of mental and spiritual support)
3. Once released from the hospital and at the gift of life house, how much help does one need with basic life skills like hygiene and cooking etc? And how functional have those of you been after released from the hospital?
4. Any pointers for what to pack without overdoing it?

Thank you all