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Liver transplant - Let's support each other

Transplants | Last Active: 17 hours ago | Replies (1623)

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@rosemarya

Welcome to Mayo Connect, @khh. I am a transplant recipient, and I am by no means an expert , except about t what I have personally experiececed. After I share some professional information that I sense that you are looking for, I will be happy to do what I can to be here for you.

I invite you to watch and learn in this recorded webinar -
DESCRIPTION
You need an organ transplant. Now what? This webinar features Mayo Clinic transplant experts David Douglas, M.D., chair of the Transplant Center at Mayo Clinic’s campus in Phoenix, Ariz., and Beverly Hansen, M.S.W., L.M.S.W., providing their best tips for navigating the journey to transplantation. This one hour session empowers patients to feel confident in their care decisions and transplant preparedness, from choosing a transplant center to setting up for a successful recovery.

- Transplant 101: Preparing for Your Journey
https://connect.mayoclinic.org/webinar/transplant-101-preparing-for-your-journey/
Karen, What brought you to this point of being interested in the transplant prossess? What has caused you to believe that you will need a liver transplant?
How can I help you?

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Replies to "Welcome to Mayo Connect, @khh. I am a transplant recipient, and I am by no means..."

3 years ago, I went in to have my gallbladder out and found out I was a Metavir 4. My mother does as well. I quit any social drinking, aleve,aspirin, everything that day. My meld varies but stays just below what is “required” for the list. However, the remainder of my findings are just about incompatible with life. I am a physician so I can realize the severity of my US, CT etc. I am 52 years old and I believe I could have many more years to help patients. I am a good pathologist. The NP that sees me down here looks at the MELD score and has not let me have a consult with a transplant surgeon, who I would think would be more likely to look at the totality of my findings. I have followed every letter of the law for 3 years with not even a consult. That is where I am now.