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Liver transplant - Let's support each other

Transplants | Last Active: May 16 6:52pm | Replies (1572)

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@khh

I would be interested in knowing the process I would need to go through, where I should go, where I have the best chances of receiving a liver transplant. I am somewhat familiar with many of the issues, but I need some real answers. I just pray it’s not too late.
Karen

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Replies to "I would be interested in knowing the process I would need to go through, where I..."

Karen, I live in Las Vegas and had my Liver and Kidney transplant last June. This was after a misdiagnosis in 2 Las Vegas Hospitals before they found out I had NASH (non alcoholic liver disease) and entered an altered state. After that, I sent all my medical records to the Mayo in Phoenix and set up an appointment There I was diagnosed on my initial visit, that I needed transplants and the evaluation process began, it took 9 months to complete the evaluation with me being emergency transferred from Las Vegas to Phoenix as I was totally unaware of when nor how I got there. They stabilized me (3 days) completed the last test and then placed me on the transplant list. I received my transplant the next day and after a rough 3 Months ( I also had carotid artery surgery causing a minor stroke) , I feel better than I have in years. My best advice - follow the advice of your pre transplant coordinator EXACTLY. Listen to your Doctor and Nurse team. Never be afraid to ask your questions - write them down prior to your visit. Have all forms completed when you get there. Speak with your Social Worker about financial problems ( you will be expected to remain in the area for a couple of months. You will be overwhelmed with "paper" - save it all and read it prior to the transplant. There are numerous websites that provide extensive detail about success rates, transplant hospital ratings, etc. I went through numerous emotions with grief for the family that lost a loved one, to gratitude that the donated organs were life giving, to my wife (my Caregiver) who was heroic in helping me get through. I hope you have a quick an peaceful journey through the process and always reach out at the Mayo as you will never be alone. Ben

Welcome to Mayo Connect, @khh. I am a transplant recipient, and I am by no means an expert , except about t what I have personally experiececed. After I share some professional information that I sense that you are looking for, I will be happy to do what I can to be here for you.

I invite you to watch and learn in this recorded webinar -
DESCRIPTION
You need an organ transplant. Now what? This webinar features Mayo Clinic transplant experts David Douglas, M.D., chair of the Transplant Center at Mayo Clinic’s campus in Phoenix, Ariz., and Beverly Hansen, M.S.W., L.M.S.W., providing their best tips for navigating the journey to transplantation. This one hour session empowers patients to feel confident in their care decisions and transplant preparedness, from choosing a transplant center to setting up for a successful recovery.

- Transplant 101: Preparing for Your Journey
https://connect.mayoclinic.org/webinar/transplant-101-preparing-for-your-journey/

Karen, What brought you to this point of being interested in the transplant prossess? What has caused you to believe that you will need a liver transplant?
How can I help you?