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Liver transplant - Let's support each other
Transplants | Last Active: 2 days ago | Replies (1617)Comment receiving replies
@contentandwell my HE episode occurred shortly after diagnosis I don’t remember the dosage but took it 4 times a day. A month and a half later I was being evaluated at Mayo they added xifaxin and had me titrate the lactulose but I still had issues. I met 2 patients at Mayo that had MELDs in the mid 40’s before it happened to me. I read an article about increasing the MELD scale because more people are having scores above 40. I do not remember where I read this, sorry. Having only one HE episode but noticed short term memory problems before transplant too. My local Gastroenterologist asked me in September if I suffered brain damage. I responded “no” but since then am starting to believe my short term memory issues may be brain damage.
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@flagal22 I recall reading that MELD can measure above 40 but it is not at all typical so they generally give that as the top of the range. Perhaps the new way to calculate MELD has made those high numbers more common. You were so lucky to have only had one HE episode. Did you also modify your diet? If I recall correctly, you did not wait long for a transplant, right?
I am really beginning to wonder if my short term memory could be from my HE episodes. I think some of mine is simply not paying enough attention, but that would not apply to things I read, or things I say. My son gets exasperated with me when I tell him something, saying I've told him that 100 times. Obviously he exaggerates but I know I do tell him things more than once. I think it's simply because I don't remember if I told him or someone else!
JK