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Liver transplant - Let's support each other

Transplants | Last Active: 2 days ago | Replies (1617)

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@contentandwell

@rowdy Ramsey I am very sorry that HE may have given you permanent brain damage. I have heard that can happen but if it did for me it was fairly minor - some forgetfulness. Is there any therapy that might help with it? There is so much they can do these days and they are always finding new therapies. Maybe a really good neurologist could help.

You have mentioned having a case pending. Who would you be suing? It sounds as if all that could be done, was. You were taking large amounts of lactulose to try to minimize HE, and being drained of fluid regularly. I did not have significant fluid build-up until shortly before my transplant, I did have edema when I traveled, but never needed to have fluid drained. I was on two diuretics.
JK

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Replies to "@rowdy Ramsey I am very sorry that HE may have given you permanent brain damage. I..."

I have started seeing a neurologist. They intend to do certain brain scans etc... hepetology said it’s possible that I have suffered brain damage. The court I’m talking about is disability. They want to deny,deny,deny. They fail to look at the problems I have now. They just say,oh her liver is better so send her to work 40 hours a week. It takes me 3 hours to get enough energy to just start the day. My memory constantly defies me. The doctor said I have severe depression and am forming a eating disorder. A restrictive eating disorder is what they said. I’m not hungry and haven’t been able to eat. I feel I am unable to swallow food sometimes. I eat an apple everyday and drink one ice mocha in the morning/afternoon. I had a colonoscopy on Tuesday and I haven’t been able to eat since. It’s only been several days. Normally I throw something else in their to eat,like a turkey sandwich. I don’t know if I’m doing it on purpose or if their is something medically wrong with me. I do have doctors checking on me and following me. I’ve been completely honest with the doctors. Even an eating disorder can’t get you disability. Guess they will approve me when I’m dead!