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Liver transplant - Let's support each other
Transplants | Last Active: 1 day ago | Replies (1617)Comment receiving replies
Thank you! I am getting used to the chat format, and answered all the recent comments first before I saw this one. Now I know how it works!
My Dad and I are very close, and I want to help my mom and myself as much as possible for this long road we are on, and about to be on.
We are currently waiting on the insurance to approve of the transplant, and then we will be proceeding to the testing. The Phoenix, AZ location is the Mayo we are receiving care at. They said his score will be high enough that he will be competitive enough for a deceased donor, which they would ultimately prefer rather than a living donor.
Thank you so much for your support.
Replies to "Thank you! I am getting used to the chat format, and answered all the recent comments..."
@tgshomes
As a Newcomer to the world of transplantation, I want you to know that no two transplant patients are alike - before, during, after - transplant. With that in mind, I want to share the link to the Transplant Pages on Mayo Connect. Unlike the discussion groups, the Pages are written by Mayo Staff, and like Discussion Groups, we have the opportunity to join in the discussions there, too! I believe it is a win win situation. I would like to suggest to you that you begin with -
Top Takeaways from "Transplant 101: Preparing for Your Journey" by Mayo Clinic Transplant Staff
https://connect.mayoclinic.org/page/transplant/newsfeed-post/icymi-key-takeaways-from-transplant-101-preparing-for-your-journey/
Here is the link to the Entire Transplant Pages. You can scroll thru the Newsfeed and find articles that are meaningful for you. You might even recognize some faces! https://connect.mayoclinic.org/page/transplant/tab/newsfeed/
Your dad is in good hands at Mayo. I look forward to hearing from you.
Connect
Just wanted to welcome you and I’m sorry to hear of your dads illness. My name is ramona and I had a transplant in July of 2015. I’m on my 4th yr post transplant. I was 47 yrs old. I’m from MD,Baltimore county. My transplant was done at the university of Maryland. I lived in the hospital for almost 2 yrs. If I was released,I would be back in the ER within 12-14 days. I had 2 main problems,fluid and HE. I was about 180 at the most when I got sick. By transplant date I weighed 420lbs. All fluid. Docs had to tap me every 12 days and each time they fulled out 6 2 liter bottles. Image a 2liter bottle of coke. Now at 5 more 2liters to that. Every 2 weeks. I now weigh 150lbs at 5 foot 9. I also lived with HE every single day for almost 2 solid yrs. I had it bad! My ammonia levels were 190-over 200. Comatose levels. I drank lactolose all day and all night long! Every single day for almost 2 yrs. Sorry,I already said that! If you have any questions feel free..... I will try to follow your posts.