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Liver transplant - Let's support each other
Transplants | Last Active: Jun 22 9:17am | Replies (1606)Comment receiving replies
HI everyone! Thank you for your valuable sharing! My sister-in-law was flown to Florida for emergency care and found that she needs a liver. She is on a liver transplant list and like others was told, it would be a cadaver. She’s #30 on the list. They’re keeping her there at the hospital or the hotel since she needs to be no more than 30 miles away. She lives about 1100 miles away as we do. We’re going to fly down when she gets the word. We can’t afford 2 trips with hotel costs and plane fare, so as much as we would love to be with her now and then, then will be more important we felt. She is 59 years old. She’s very independent, but is welcoming us coming down when the time comes, so we know we need to be there. We would of been there no matter what anyway. Didn’t know anything on transplants and this site has helped us gain some insight. Thank you so much.
Replies to "HI everyone! Thank you for your valuable sharing! My sister-in-law was flown to Florida for emergency..."
@gramjr1 Hi, and welcome to Connect. How is your sister-in-law doing now? I presume that she is at the facility that Mayo has for transplant candidates who are waiting or have just had transplants. How long do they anticipate for her to get to the top of the list, being at #30 now?
I hope she moves up the list quickly or that somehow something happens so she won't have to wait too long.
JK
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gramjr1, I am reaching across the miles to extend a virtual handshake to say Welcome to Mayo Connect. I'm also sending a hug, because I know from my own experience how much that helps.
I am so very happy that you have found Connect, and I want you to know that you are invited to browse through the list of transplant discussions, and to join in anywhere at anytime with any question that you might think of.
I was 59 when I was listed for a liver transplant locally; I was 60 when I was airlifted to Mayo Rochester after 5 days in ICU (@800 miles). I spent 2 weeks in the Hospital at Mayo, then discharged to stay nearby until transplant. My husband and I stayed at the Gift of Life House for transplant patient/caregiver during the duration of my time in Rochester. In Jacksonville, Florida, Gabriel House of Care in offers low-cost housing for transplant patients and their caregivers. I am sending you this link to the Transplant Hospitality Houses - A Home Away From Home.
https://connect.mayoclinic.org/page/transplant/newsfeed/transplant-hospitality-houses-a-home-away-from-home/
From my own experience, you can support your sister-in-law at a distance by your thoughts, prayers, cards, and email messages of encouragement and love. My husband had to read them to me because, I was too weak to do that. I will honor my 10th anniversary in April.
Holidays Greetings - To all who are touched by Organ Donation
https://connect.mayoclinic.org/discussion/holidays-greetings-to-all-who-are-touched-by-organ-donation/
Who is with your sister-in-law at this time? That person also will benefit from your support.