How did you manage the pain side effects of Prolia?

@parrotqueen Darn sugar has ti be bad fir you. I hava heard this before. Growing up as 1/2 Danish and on a farm, seems like I grew up on sugar. I don't eat as much of it now. But, I do crave it. My last Dex was ostseopenia, but parts of me were low, so now I am on Tymlos my help my bones to become stronger. I have had to do the injection for 6 weeks before my surgery. They said I needed to do it for 2 years, but my endocrinologist told me I should just take it till my surgery heals. Then they will put me on another one, I suspect oral I hope. My stomach is aching from the injections and I have gained 11 lb, which the endocrinologist said is from the Tymlos and I can stop it for 2 weeks if it's ok with my surgeon. My surgery is June 9th. I can hardly wait. I will probley sp have more pain, but at least I will have pain pills to take, Percadan, Tramadol, and Valium. My spelling has been bad since I'm on the Tymlos it does make you tired, but I was tired before because of the pain. Thanks for your advice. We do have to be careful with natural meds, some do not go with an antidepressant if you are on one.

I'm so sorry - the address for ConsumerLab.com was misspelled in my post. This is the correct spelling... I was so tired last night. I will say prayers that your surgery goes well lilypaws. One of my friends just had the most extensive back surgery - she is so happy to be on the other side of it - but she will have to have another for her lower back when she heals from this surgery. They had to fuse her entire back. She found sleeping in a recliner was easier than lying flat - so if you can get your hands on a recliner, it might help. you. You will know when the time comes.

Thank you for the information. I won’t be taking another holiday, but I was younger and tired of taking a number of medications, thinking one year wouldn’t have a significant impact. My doctor tried to warn me, but I didn’t listen. This did not impact my foot fracture as I did that many years ago (I’ve had osteoporosis since age 47 and I’m 65 now). The tricky part will be the long term care given the drugs I’ve taken; bad reactions; etc.....

We're the same age. At 47, I had osteopenia and by my early 50's osteoporosis. I kept saying no to medication until two years ago. My numbers just kept getting lower and lower. I think its tricky business for many of us.

I'm so sorry Sue. I also had osteopenia in my early 40s (and ignored the doctors - well, to be fair, I had some more serious health problems) and I'm 69 now with a DEXA of -5.7. But I did so many things wrong - chief among them was a life-long two six-pack a day habit of Diet Pepsi. I had a pituitary tumor that also robbed me of key hormones: Human Growth Hormone, adrenal, thyroid, ect. And menopause dealt the final blow. The pituitary tumor had me bedridden for ten years - as all the muscles wasted out of my body while I waited to be diagnosed - and being inactive didn't help. It got so bad, I was on a ventilator! I wish you all the luck getting your bones built back up. I promise to post. my DEXA score once I am cleared to go get one - and then I'll know if supplements and exercise work. This is such a rotten problem to have and I think if it happened to men more often, we would know more about it! I honestly don't think anybody has found the key to stopping this and building up our bones safely - but it's a problem we need a cure for desperately. I remember when I was 20, there was a little boy that lived next door that had a terrible case of osteoporosis and he was only ten years old! That was 1970! He'd be out riding his bicycle one day - and in a cast the next. I wish us all good luck. I hope everybody will post what has worked for them so we can all learn. Again, I recommend a Facebook group called Osteoporosis Natural Remedies. It's a fairly active group - some days I can't keep up with all the posts.

@parrotqueen That 10 year old boy probably actually had brittle bone disease. A boy we knew who was around my son's age had that, it was very debilitating.
JK

Yes well I was only 20 years old and it was 50 years ago. It was really so sad. I remember thinking at the time that he had a long road ahead of him.

@parrotqueen you've certainly had your fair share of health issues. Your DEXA score makes me feel like I have a super skeleton in the -3. Something! I did have very good results from Prolia in both my hip and spine but no longer will continue with the injections. With so much bone loss have you had many/any fractures? (Maybe you've mentioned this already). I am also a diet Pepsi fan (one a day):) (I know bad for the bones but life is short).

My doctor put me on Prolia about five years ago and I was in agony almost from the moment I got the injection. I did not make the connection until three years later. I became an old woman overnight it seemed. Could not walk properly, had difficulty getting in and out of the car, holding on to railings. When I was renewing my prescription at the pharmacy the pharmacist asked how I was getting on and I told her about my pains and she told me it was a side effect. When I researched it I saw the difficulties others were having and I refused to take the injection. Again, overnight I was back to my nimble self. My sons could not believe the difference in me. However, six months ago my doctor suggested I try it again and I am back to being in pain - I have to lift my legs into the car and the skin on my face has become red, scratchy, itchy, sore and crusting. It is disgusting. I am definitely not going to take a second injection. I am miserable.

I am so sorry you are going through this. There are other ways to deal with osteoporosis. I am using better nutrition, supplements, and I am also using a low-dose estrogen patch. My DEXA scan score was -5.7 and I was fracturing. That has stopped. I am taking boron (6 mg four times a day), Vitamins D3 and K2 (mk4, mk7), a little potassium, two kinds of magnesium (magnesium glycinate and magnesium L-threonate), and a little calcium (I try to get calcium from food - but I take one tablet a day to cover what I am not getting from food). I am no longer fracturing. I will be getting a DEXA scan as soon as the pandemic is over. There is a group on Facebook called Osteoporosis Natural Remedies where people post their before and after scores and what they did to improve. I wish you good luck.