Uterine Papillary Serous Carcinoma: What treatments did you have?

Thank you, Polka Gal. I wish you and Golden Girl continuing excellent results on your check-ups. I have been thinking about you because I have become involved with an organization called SHARE in NY. They have been around a while offering support for breast and ovarian cancer survivors. This year they added uterine cancer survivors to their family. I am training to join their Helpline. They presented an excellent one-hour online program recently by Dr. Jennifer Mueller, gynecologic cancer surgeon at Memorial Sloan Kettering Cancer Center on the newest research for uterine cancer, including USPS. You can watch it here: https://www.sharecancersupport.org/new-treatment-options-for-uterine-cancer/ Wishing you all the best.

Goldengirl2: Blood work is fine, if your CA125 and HE4,S are within normal range, but be alerted if either of these tests seem to increase in four consecutive tests, even if they are still within normal range. It may be a very early sign of recurrence. Even CT scans might not be beneficial at that early stage.

I don’t know what HE4 or S is.. that’s not part of my blood work protocol

@goldengirl, you are absolutely right, no reason to believe all is not well, and happy to hear all is well with you! As we all know, each of our situations is different, one from the other. My last treatment was in Nov., 2018. My protocol for the first 2 years after that is a check-up every 3 months with pelvic exam and a CA125 blood test, and every 6 months I get a CT scan. So every other check-up, I get the scan, and I am due for one this check-up. My understanding is that if all continues to go as well as it has, I will then switch to 6-month check-ups with a CA125 check, and I think a CT scan once a year, for the next 3 years - so this switch would begin Nov., 2020. And I should be able to have my port removed as of Nov., 2020, as well - which will be wonderful! Of course with COVID, who knows. I will be sending good vibes to you in return, that all goes well for you in 2 weeks 🙂

Thank you, embeth, for sharing this! I look forward to checking it out : ) How wonderful of you to take the time to join their Helpline! The new research that is taking place is very exciting!! Wishing you all the best, as well.

I don't know what HE4 or S are either, don't believe I have had that done?

HE4,S is a test for a certain protein in your blood. My Mayo gyn/oncologist/surgeon feels it is the most important indicator of all. My local oncologist did not use it until I asked for it. Why not be certain?

I have asked many times about the protein aspect as my pathology says over-expression of p53.. which is a protein ... i will look into this test. Thank you

@starko thank you for clarifying. I plan to ask my gyn/onc/surgeon about this when I see her next week.

@goldengirl2 and @embeth99 Hello friends! Just had another check-up round, which always makes me think of you both. Praying all is well with each of you. All continues to go well for me, I am 2 years in remission now, and very grateful. Embeth99, how goes your work with Helpline? Wishing the best for both of you 😊