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Small Intestine Bacteria Overgrowth (SIBO)
My wife, after years of suffering from debilitating nausea and fatigue, has finally been diagnosed with SIBO as confirmed by a hydrogen breath test. It is estimated the bacteria has had at least two years to grow and may be well established. She has started on Xifaxan, at $35 per pill, but it is estimated that elimination of the SIBO may take up to six months. Her day now starts with her waking up with nausea and when she has a cup of tea and toast in the morning she gets sick within fifteen minutes thereafter. Her sickness is accompanied by violent belching, and at times she regurgitates liquid vile. The only drug she has for nausea is Zofran which does nothing for her. Are there any other SIBO sufferers that are experiencing the same symptoms, and what are you taking to reduce the nausea?
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I had a LYNX devise on my esophagus. It's a titanium magnetic ring that stays closed and keeps acid from entering my esophagus. I had severe acid reflux and SIBO can cause that since it forces acid and gas up the esophagus and causes erosion. I had this done at Mayo in 2014. Also Hernia at the same time. I have to watch everything I eat! Right now I'm doing carnivore diet seemed to feel better after 3 weeks so tried a salad last night and still in pain!!
I strongly recommend joining this SIBO support group on facebook: "SIBO SOS community" (I'm not allowed to post URLS here, sorry). The group files have TONS of resources (testing, treatment, diet, lectures, etc.). Whenever you post a question, there'll be answers. There are also info on alternative herbal antimicrobials for treating SIBO for those who cannot afford Xifaxan.
In the group files there's a list of naturopathic doctors specialized in SIBO. Honestly they know more than the main stream MDs about SIBO. SIBO is a secondary condition, which has a underlying cause (like food poisoning, dysbiosis, low stomach acid...). You have to identify and treat the root cause to prevent SIBO from coming back.
Also this website, developed by SIBO expert Allison Siebecker, is super helpful as well:siboinfo.com
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3 ReactionsThank you!
I've been on lowFod 7 weeks and now 2 weeks and taking herbals reccomended by siebecker. Very little difference and I've been on xifaxan too 🙁 nothing is helping me. Water hurts.
Check out foodmarble.com the devise allowed me to track how I digest food real time many times a day... everyones food transit time is different and modifyhealth.com when I get to lazy to cook healthy!
Did you find anything that helped? Struggling a lot with this. Took amoxcicilin-clav, xifaxan and now on herbals berberine/oregano/Allicin. Waiting for Atrantil and GI advantage for repair. Its hard to tolerate water at this point. I suspected this last April and GI doctor couldn't test because of Covid. He just said IBS and gave me antidepressant and bentyl which actually slows motility and I think I have that. I lost 30lbs in 2 months from pain after I'd eat. I had a rib surgery that left me constipated for 10 days and all the pain meds made it worse. I was finally tested in January. Anywho!! I have very little relief and I dont know who to turn to.
Thank you!
Aimee
Sorry your your in so much distress Most GI Doctor do an incredible job but ours is a disease of exclusion and there isn't a whole lot of time in an appointment to get things done. So it is on us to participate. For me "food is medicine" check out this brilliant blog https://www.ibsfree.net/news Also check out the work at Hopkins being done by Dr Jay Pasricha
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1 ReactionI don’t know what Nessin? is. I’ve been seeing gastros, for years. The only diagnosis I get is: IBS C, diverticulitis, gastritis and the usual small polyps diverticular nothing that stands out up until October 2020..
Now, the pain I have is UNBEARABLE at times. My stomach can bloat so that I must “prop” it just to walk...& apparently my bowels are dead. No BM w/out linzess, amitiza or Trulance, and then it’s just explosive air and water
Erythromycin, a low dose, will stimulate bowel activity. I still have to use laxatives. Sorry, I sympathize!