1. < MAC & Bronchiectasis

how to take antibiotics?

Posted by norah @norah, Oct 22, 2018

this is my second time taking the big three antibiotics ,last time was 2015 when i also had lung surgery (left upper lobe) for cavities caused by Mac. Anyway last time i took my antibiotics before bed which worked well . Now the nurse said better to take 2 in the morning and strong Rifampin in the evening . Starting today so i’m curious friends how you take them . Also does it really matter much if you take them with or without food ? Your input would be greatly appreciated . thank you ,norah

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Nov 2, 2018
In reply to @norah "Good suggestion about checking in with your doctor . My last round of antibiotics I took..." + (show)
@norah

Good suggestion about checking in with your doctor . My last round of antibiotics I took them all at night probably two or three hours after eating. I feel the most important thing Is Taking The Antibiotics and whatever works best for my schedule and my body is what i must follow . I would be more likely to forget to take them doing it twice a day. So.....
I was on infusions also three times a week .

I had almost 4 years mac free and had so much energy and felt so alive . It was all worth it . I met a wonderful partner and had the enthusiasm to write 3 new books ,took an amazing road trip across the US and Canada , also went on a couple of long sailing trips and i’m 63 no spring chicken 😂.

None of this would be possible if it was not for the antibiotics
Before i was diagnosed i could hardly get out of bed and had a persistent cough i really thought i was dying .
So now when i take the big three I take them with so much gratitude .

The Big Three and the surgery gave me back my life . For those of you who are struggling -
keep up the heart there is light at the end of the tunnel .

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@norah Hi Norah. OMG! What an incredible post! Thank you for your inspirational words.

REPLY
Margie E | @margiebanks | Nov 2, 2018
In reply to @ling123 "@suzyqueue @windwalker I can't open the link either. Just got a message that said "The page..." + (show)
@ling123

@suzyqueue @windwalker I can't open the link either. Just got a message that said "The page you are looking for could not be found".

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@ling123 @suzyqueue @windwalker I couldn't open either, got the same message.

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1 reply
ling123 | @ling123 | Nov 2, 2018
In reply to @margiebanks "@ling123 @suzyqueue @windwalker I couldn't open either, got the same message." + (show)
@margiebanks

@ling123 @suzyqueue @windwalker I couldn't open either, got the same message.

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@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get to the posting that Terri wanted us to see. You will need to remove a part of the link starting at "bookmark....." all the way to the end. Try this link here (it's the first part of the link after the deletion): https://connect.mayoclinic.org/comment/113996/. Hope it works for you.

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3 replies
suzyqueue | @suzyqueue | Nov 2, 2018
In reply to @ling123 "@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get..." + (show)
@ling123

@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get to the posting that Terri wanted us to see. You will need to remove a part of the link starting at "bookmark....." all the way to the end. Try this link here (it's the first part of the link after the deletion): https://connect.mayoclinic.org/comment/113996/. Hope it works for you.

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Thank you so much! Will try it as soon as I can!!!

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irene5 Irene Estes | @irene5 | Nov 2, 2018
In reply to @ling123 "@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get..." + (show)
@ling123

@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get to the posting that Terri wanted us to see. You will need to remove a part of the link starting at "bookmark....." all the way to the end. Try this link here (it's the first part of the link after the deletion): https://connect.mayoclinic.org/comment/113996/. Hope it works for you.

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That works Ling. I love how you persevere to get things done! (Irene)

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Margie E | @margiebanks | Nov 2, 2018

@ling123 Yep, that worked! I had read this month's ago but now It's bookmaked! Thanks so much!

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Mentor
Terri Martin, Volunteer Mentor | @windwalker | Nov 2, 2018
In reply to @ling123 "@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get..." + (show)
@ling123

@suzyqueue @margiebanks @windwalker OK, I think I have figured out a way to get to get to the posting that Terri wanted us to see. You will need to remove a part of the link starting at "bookmark....." all the way to the end. Try this link here (it's the first part of the link after the deletion): https://connect.mayoclinic.org/comment/113996/. Hope it works for you.

Jump to this post

@ling123 Hi Ling! Thank you for straightening this link out so that it works. That is what I adore about this group; our members are always there to make sure that nobody gets left hanging. Thanks again!

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Mentor
Sue, Volunteer Mentor | @sueinmn | Nov 3, 2018

I have been on the 3 MAC antibiotics for 3 months, after also being treated for pseudomonas. Like Norah, I had a cough for many months, fatigue, fevers, weight loss & felt life was passing me by... After 3 months on the meds I am beginning to recover some energy (still hit a wall of fatigue around 3-4 pm though) but I deal with side effects of the meds the day after every dose. My doc recommended taking the dose in the evenings with yogurt, plus a daily probiotic, but I wanted to be sure I was getting the best possible effect, so I tried the NJH method of 2 in the morning and one in the evening, with nibbles of cracker...Wow! Sick all day & still feeling bad the next morning. No way I could stay on this regimen and still have a life. So I am back to all 3 at bedtime, at least 2-3 hours after last food, and just modified to have only a little cracker with it. If that means a little less effectiveness, and a little longer on the meds, I can deal with it.
By the way - probiotics - having been on many antibiotics on the way to diagnosis of MAC, my gut was already really messed up and I was taking probiotics to try to fix things. On a long trip, I ran out and after 5 days I couldn't wait to find a health food store that sold my brand - I am a believer now.
So my takeaway, it may be best to take the antibiotics as recommended by NJH, but it if that doesn't work for you, find a regimen you can live with. They cannot work at all if you leave them in the bottle because they make your life too miserable.

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