1. < Breast Cancer

Aromatase Inhibitors: Did you decide to go on them or not?

Posted by nanato6 @nanato6, Oct 12, 2018

Nanaloves: I’m about to start arimidex and just feel that the contraindications , bone issues etc. are overwhelming. I’m 70 years old, dodged a bullet I feel with zero stage DCIS but the follow up is pretty much no different then if it was more aggressive. I’ve just done 33 treatments of radiation and now they advise arimidex as a preventative. I’m not sure with the beginnings of arthritis and lower back. sensitivity already that I should take it. Anyone not take it and not have a recurrence within the 5 years.

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yahomich | @yahomich | Jan 28, 2021

Hi, have you gone to a foot specialist? I did and have planters fasciitis, I have gotten custom orthotics right around Christmas and I can say for the most part I am pain free now. I can't walk barefoot too good yet but I think in time I will be able to as well. Also vionic makes great shoes for it if thats what you get diagnosed with.

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2 replies
mom23boys | @mom23boys | Jan 28, 2021
In reply to @jeannie53 "@wyngnit Severe calf pain and the bottom of my feet. The pain was so bad I..." + (show)
@jeannie53

@wyngnit Severe calf pain and the bottom of my feet. The pain was so bad I would waddle when I walked. I don't know if it has anything to do with the meds making it worse but I generally have random aches and pains anyway. I wonder if there is a connection.

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Hi jeannie. Before I could respond Yahomich noted her plantar fasciitis. I'm on Letrozole, another AI. About 9 months in I had the painful arch pain. I had to roll my feet on the carpet to loosen them just to stand up and then walk slowly until it eased. It was written off as simply plantar fasciitis. Funny thing is about 4 months later it disappeared as quickly as it had arrived. I swear it's another side effect. I also had slight joint pains in my knees, back, 7 months in that have mostly resolved. I'm at 20 months.The only lingering is hair thinning. Started at 7 months, stopped after about 2, and has slightly re-started. I'm in this for the long haul as a stage 4 "denovo" BC. I think sometimes that's why things don't bother me as much because I don't really have a choice.

Peggie

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1 reply
jeannie53 | @jeannie53 | Jan 28, 2021
In reply to @mom23boys "Hi jeannie. Before I could respond Yahomich noted her plantar fasciitis. I'm on Letrozole, another AI...." + (show)
@mom23boys

Hi jeannie. Before I could respond Yahomich noted her plantar fasciitis. I'm on Letrozole, another AI. About 9 months in I had the painful arch pain. I had to roll my feet on the carpet to loosen them just to stand up and then walk slowly until it eased. It was written off as simply plantar fasciitis. Funny thing is about 4 months later it disappeared as quickly as it had arrived. I swear it's another side effect. I also had slight joint pains in my knees, back, 7 months in that have mostly resolved. I'm at 20 months.The only lingering is hair thinning. Started at 7 months, stopped after about 2, and has slightly re-started. I'm in this for the long haul as a stage 4 "denovo" BC. I think sometimes that's why things don't bother me as much because I don't really have a choice.

Peggie

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@mom23boys Hi Peggie, With me it was just one ache after another until I couldn't take it any more. Making the decision to stop the medicine was much different than yours and easier because I was stage 1. It's amazing what people go through and they just keep plugging along. God bless you I'll keep you in my thoughts. Jeannie

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1 reply
jeannie53 | @jeannie53 | Jan 28, 2021
In reply to @yahomich "Hi, have you gone to a foot specialist? I did and have planters fasciitis, I have..." + (show)
@yahomich

Hi, have you gone to a foot specialist? I did and have planters fasciitis, I have gotten custom orthotics right around Christmas and I can say for the most part I am pain free now. I can't walk barefoot too good yet but I think in time I will be able to as well. Also vionic makes great shoes for it if thats what you get diagnosed with.

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@yahomich All my foot pain went away after I stopped the medicine. It definitely was related it took a few months to feel better after I stopped it.

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1 reply
jeaniebean | @jeaniebean | Jan 28, 2021
In reply to @jeannie53 "@yahomich All my foot pain went away after I stopped the medicine. It definitely was related..." + (show)
@jeannie53

@yahomich All my foot pain went away after I stopped the medicine. It definitely was related it took a few months to feel better after I stopped it.

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......and it has been 12 weeks now and I still get it on the tops of my feet, making it very hard to walk in shoes for any length! But my feet are fine now on the bottom.

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wyngnit | @wyngnit | Jan 28, 2021
In reply to @yahomich "Hi, have you gone to a foot specialist? I did and have planters fasciitis, I have..." + (show)
@yahomich

Hi, have you gone to a foot specialist? I did and have planters fasciitis, I have gotten custom orthotics right around Christmas and I can say for the most part I am pain free now. I can't walk barefoot too good yet but I think in time I will be able to as well. Also vionic makes great shoes for it if thats what you get diagnosed with.

Jump to this post

Birkenstock also are orthopedic and more than sandals. Orthotics helped me too as well as exercises for the feet and toes when I Tore my plantar fascia

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mom23boys | @mom23boys | Jan 29, 2021
In reply to @jeannie53 "@mom23boys Hi Peggie, With me it was just one ache after another until I couldn't take..." + (show)
@jeannie53

@mom23boys Hi Peggie, With me it was just one ache after another until I couldn't take it any more. Making the decision to stop the medicine was much different than yours and easier because I was stage 1. It's amazing what people go through and they just keep plugging along. God bless you I'll keep you in my thoughts. Jeannie

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Hi jeannie! Thank you for the thoughts. You know, if I were much older, say 70's (I'm 59), I think I'd opt more for quality of life over quantity. That plays quite a bit into the idea of putting up with whatever side effects they throw our way until you find you're living to control the pain rather than just living. I think that makes sense. Have a nice day.

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1 reply
jeannie53 | @jeannie53 | Jan 29, 2021
In reply to @mom23boys "Hi jeannie! Thank you for the thoughts. You know, if I were much older, say 70's..." + (show)
@mom23boys

Hi jeannie! Thank you for the thoughts. You know, if I were much older, say 70's (I'm 59), I think I'd opt more for quality of life over quantity. That plays quite a bit into the idea of putting up with whatever side effects they throw our way until you find you're living to control the pain rather than just living. I think that makes sense. Have a nice day.

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@mom23boys I agree with you 100%. I was diagnosed at 64 I'm 67 now. The doctors explained that the medication would lower my chance of recurrence by 50%. With a low oncotype score I figured I was in a pretty good place to take a chance. I will say that many days I question and hope that I made the correct choice and that works on my nerves.

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sparklegram | @sparklegram | Feb 28, 2021
In reply to @sparklegram "Agreed!!!!!" + (show)
@sparklegram

Agreed!!!!!

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Hello everyone, has anyone else stopped receiving Mayo Clinic group posts? I haven't had any for quite awhile from any of my groups.

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1 reply
Mentor
Laurie, Volunteer Mentor | @roch | Feb 28, 2021

That happen to me few months ago and I contacted Mayo Connect and they fixed. Somehow my email was flagged invalid.

In grey area at bottom of Mayo Connect page is a "Contact Mayo Clinic Connect" link, fill out from at tell them your problem.

Laurie

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