Pudendal Nerve Entrapment/Neuropathy/Damage

Posted by mandiPNE @mandee, Oct 5, 2018

Hello from a new member. Am wondering if anyone suffers from the monster Pudendal Nerve Entrapment/Neuropathy/Damage? I do. And I'm very alone in it. It is a very uncommon condition, and because of its personal nature, one that many people may not be comfortable opening up about. There seems to be a more vocal/visible presence of patients in the US, AUS and France. I hope, I need, I want - for it be made more aware of here in Canada. If there is any one who suffers from it, or who thinks they might, please feel free to open up about it. Please join me in advocating for ourselves in this horrible condition.

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@rstollery

What kind of pain patch are you using that works so good?

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Yes Please tell us about the patch that you’re using

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@cake

Are you able to sit down without pain with this pain pump?

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I can sit down and whether or not I have pain depends on what kind of day pain wise I am having. Mostly I can sit down anytime. I will tell you that sitting is an irritant and sitting for long periods of time really ramps up the pain for me. Also depends on what kind of seat you are sitting on. Long term sitting in a hard chair is terrible. Sitting around my house in comfortable a chair is no problem. I hardly notice the pain. I can always sit. I have just learned which type of seats to avoid if possible.

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@skiak22

Hi all. I'm a new member and I have read all the posts concerning the pelvic pain. Mine started 9 years ago from no apparent reasons and I've been through all the procedures that everyone has described. I've been standing up for these 9 years trying to find a specialist that knows how to deal with this problem. Sitting is very painful but one thing that no one has mentioned in their posts is laying down is just as painful if not worse. Anyone out there that has both problems? The only way I can get any sleep is by taking prescribed medication. Otherwise, I'm awake all night long and of course the pain is there all night long.

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Hi skiak22, yes I am 9 months into this PN pain and now I must take a pain med when laying down to sleep. What state do you live in? I'm in WI.

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@cake

Hi skiak22, yes I am 9 months into this PN pain and now I must take a pain med when laying down to sleep. What state do you live in? I'm in WI.

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Most of my pain is mostly at night when I'm trying to sleep and I get two to three hours and I have to wake up and walk around Fortec medical marijuana. It really helps a lot that's what makes me fall back to sleep again for another 3 hours.

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@donfeld

Most of my pain is mostly at night when I'm trying to sleep and I get two to three hours and I have to wake up and walk around Fortec medical marijuana. It really helps a lot that's what makes me fall back to sleep again for another 3 hours.

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Thanks, donfeld. I've been seeing that mentioned quite a bit lately.

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@cake

Thanks, donfeld. I've been seeing that mentioned quite a bit lately.

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If you are in states that it's completely legal for recreation you get better quality marijuana and I know that a lot of people do CBD, but I believe the THC is a very important ingredients. What does everybody think?

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@donfeld

Most of my pain is mostly at night when I'm trying to sleep and I get two to three hours and I have to wake up and walk around Fortec medical marijuana. It really helps a lot that's what makes me fall back to sleep again for another 3 hours.

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I concur. Medical marijuana use in the evening helps me greatly with pain and insomnia. My opiod pain reliever wakes me so is counter productive at bed time.

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@donfeld

If you are in states that it's completely legal for recreation you get better quality marijuana and I know that a lot of people do CBD, but I believe the THC is a very important ingredients. What does everybody think?

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I think you are correct. It's legal in my state of NY and I'm legally certified to purchase through a dispensery. I feel its safer, better quality and guided use. CBD is for calmness/relaxation. THC is for pain.

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