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mandiPNE (@mandee)

Pudendal Nerve Entrapment/Neuropathy/Damage

Chronic Pain | Last Active: Jun 18 4:08pm | Replies (448)

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My wife has been treated by a physical therapist who specialized in this kind of pain but with little or no success. I will look into the Neurological Institute in Phoenix. We live on the east coast.

What is confusing about her pain is that some days when she gets up from bed the pain is very low and at these times doesn't even have to take pain medication. Then as the day goes on the pain gets worse and then she has to get back on her normal pain med routine. Given this it appears there something obvious that we are missing relative to the source of pain.

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Replies to "My wife has been treated by a physical therapist who specialized in this kind of pain..."

It could be a matter of positioning. Also as an FYI there is a doctor in GA that specializes in guided ablation therapy but does it via freeze instead of burn with good results

@bkruppa this is typical of peripheral nerve enteapment pain or peripheral nerve compression, imo. I have the same thing with my leg, i feel worse after using my leg too much and best if I rest. I'm going thru surgeries now to get entrapments fixed.

@bkruppa Do you think it might be what she is doing during the day that increases pain? Does she sit most of the day and is this when she has more pain? Is there less pain laying down when her legs are extended? What I think about is the psoas muscle. It attaches on the inside on the ilium or the "hip bones" and connects to the spine, and sitting shortens this muscle. Because it affects the pelvis and the alignment of the bones that form the pelvis, shortening might increase her pain. That would also shorten her strides when walking. I have to stretch when mine get shorter with lunges or even standing against a door frame and pressing a small ball inside the ilium to release the muscle. These could be questions to ask of her therapist. Perhaps keeping notes on what position she is in when pain increases would be helpful, and what positions are less painful.

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