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Lewy Body Dementia with Parkinson

Parkinson's Disease | Last Active: Mar 18, 2022 | Replies (48)
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@lisalucier

Hi, @arlenephoto. Welcome to Mayo Clinic Connect. I'm really sorry to hear that your husband has been spiraling downward with his movements and walking, as well as his pain.

Mayo Clinic does have expertise in Lewy Body Dementia. Here is some information about the disease, treatments and care at Mayo Clinic: https://www.mayoclinic.org/diseases-conditions/lewy-body-dementia/symptoms-causes/syc-20352025.

You may also be interested in this Mayo Clinic Q&A on Lewy Body Dementia, https://newsnetwork.mayoclinic.org/discussion/new-international-guidelines-issued-on-dementia-with-lewy-bodies/.

If you'd be interested in having your husband seen at Mayo Clinic, you may request an appointment here: mayocl.in/1mtmR63.

Has anything helped so far with his pain, @arlenephoto?

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Replies to "Hi, @arlenephoto. Welcome to Mayo Clinic Connect. I'm really sorry to hear that your husband has..."
James E Bruce | @arlenephoto | Feb 4, 2019

Thank you Teresa, I think at this time I need to learn more about his Parkinsons. His movement is my big concern at this time. I have been taking him to the VA clinic at this time. They seem to know so much more than the local doctors. The medication he is taking now has seemed to be helping with his Tremors and Twitching. My biggest concern, at this time, is his movement walking. It's so difficult standing and walking. Funny thing is,,, he does more for himself when I'm not around the house.
I always leave Healthy Meals and lots of food in the Refrig! That way I know, when he's hungry he gets up and EATS!
I have recently been taking him to the PT facility.

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