1. < Eye Conditions

Severe eye pain and visual disturbances no one can diagnose

Posted by aaronh819 @aaronh819, Sep 25, 2018

I have been to so many specialists had mri ct which all came back good thank the Lord. Week before last I was admitted into the university of Louisville and they still could not find out what is causing me these terrible problems. They believed me 100 % just did not have any answers. They done another mri which showed volume loss and I Pray with every ounce in me that doesn’t mean anything bad. my worst problems are severe debilitating eye pain and visual disturbances that are never ending. The worst vision problems are seeing objects repeatedly everything I look at, it doesn’t have to be anything bright anymore, severe light sensitivity, flashes of light, always see light with my eyes closed, seeing moving white dots of light all the time, shadows and spots that aren’t there silhouettes of almost everything I look at bad floaters which I don’t hardly notice compared to the other bad things and so so much more. I have been to multiple eye specialists who all say my eyes structurally check out fine. This has progessively gotten so much worse it’s almost unbearable. Also my eyes have became red almost all the time. The pain has made it impossible to live life normally I’ve dealt with this for over a year with it increasingly getting worse. I am honestly worried about my life this has progressively gotten so much worse it has stopped life as I knew it and can’t find help. Have also been having one sided headaches for years now and seeing my heartbeat in my vision along with plugged ears all the time. I’m only 32 all I ever want is please God in Jesus name to have everything restored back to normal I desperately need a miracle. Anyone that can help in anyway please do. I know we aren’t suppose to post personal info but I don’t mind I am beyond desperate.

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Jamie Olson | @jamienolson | Oct 13, 2018
In reply to @anniemaggie "I had severe eye pain, like a hot poker mainly left eye, sometimes both. Saw an..." + (show)
@anniemaggie

I had severe eye pain, like a hot poker mainly left eye, sometimes both. Saw an ophthalmologist neurologist. He said it wasn't from the optic neuritis I had once, thought it might be from my ms. It stopped after a few years, had to lie in a dark quiet room, holding my eye.

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Hi @anniemaggie. Welcome to Mayo Clinic Connect! Thank you for your reply. Did the neuro-opthamologist ever give you a diagnosis? And the pain just stopped after a few years? Were you able to pinpoint any change that would have aided in stopping the pain?

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1 reply
Kay Rovik | @anniemaggie | Oct 13, 2018
In reply to @jamienolson "Hi @anniemaggie. Welcome to Mayo Clinic Connect! Thank you for your reply. Did the neuro-opthamologist ever..." + (show)
@jamienolson

Hi @anniemaggie. Welcome to Mayo Clinic Connect! Thank you for your reply. Did the neuro-opthamologist ever give you a diagnosis? And the pain just stopped after a few years? Were you able to pinpoint any change that would have aided in stopping the pain?

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No he just said no to the optic neuritis I had once. He was at the university of michigan. I have major problems my whole body. I have everything, but nothing else related to the eye. He said it may have been from the multiple sclerosis i have.

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1 reply
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 14, 2018
In reply to @dibr "I can relate to the pain and the visual problems (but my visual problems are not..." + (show)
@dibr

I can relate to the pain and the visual problems (but my visual problems are not where near as bad as yours). I had an iridotomy done on both eyes on July 24 this year. I had no problems with the left eye. But my right eye is an entire different story. Starting from the first laser, the pain was unbearable and I suddenly endured eye pain and headaches on my right side only 10/10. I had severe pain on my eyebrow bone and the inside corner next to my nose. I also had very bad light issues. All 3 issues still remain today. The light issues are quite a bit better now but not gone (it's like the vertical light glare in a window when I blink). And the right eye pain and headaches on right side have dropped from a 10/10 to anywhere from a 3/10 to an 8/10. My pain and headaches trigger to the high levels when I'm outside even though I wear sunglasses. Or even when I'm stressed, do light yard work or light house work. My family doctor believes me and is trying to find a very good ophthalmologist to get a second opinion on the eye pain and headaches.

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@dibr, Welcome to Mayo Connect, and Welcome to this discussion.
Did your pain and visual problems come on suddenly? And have you found any ways to live with this until you get connected with a good opthamologist for another appointment?

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2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 14, 2018
In reply to @anniemaggie "No he just said no to the optic neuritis I had once. He was at the..." + (show)
@anniemaggie

No he just said no to the optic neuritis I had once. He was at the university of michigan. I have major problems my whole body. I have everything, but nothing else related to the eye. He said it may have been from the multiple sclerosis i have.

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@anniemaggie, Do you still have to lie in a dark room for relief? Or are the symptoms gone. Have you experienced any change in your vision due to this?

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1 reply
Kay Rovik | @anniemaggie | Oct 14, 2018
In reply to @rosemarya "@anniemaggie, Do you still have to lie in a dark room for relief? Or are the..." + (show)
@rosemarya

@anniemaggie, Do you still have to lie in a dark room for relief? Or are the symptoms gone. Have you experienced any change in your vision due to this?

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Gone, only lasted a couple years. Only one problem in last ten years. Figured it was from the ms cause problems show up in ms for months & years, then gone for long time.

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Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 14, 2018

@anniemaggie, I am happy for you that you have relief from this. I pray that it continues for you.

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dibr | @dibr | Oct 14, 2018
In reply to @rosemarya "@dibr, Welcome to Mayo Connect, and Welcome to this discussion. Did your pain and visual problems..." + (show)
@rosemarya

@dibr, Welcome to Mayo Connect, and Welcome to this discussion.
Did your pain and visual problems come on suddenly? And have you found any ways to live with this until you get connected with a good opthamologist for another appointment?

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@rosemarya I did not have headaches or eye pain prior to iridotomy, only until immediately after the first laser zap of the iridotomy. From that point forward, they have never gone away.

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dibr | @dibr | Oct 15, 2018
In reply to @rosemarya "@dibr, Welcome to Mayo Connect, and Welcome to this discussion. Did your pain and visual problems..." + (show)
@rosemarya

@dibr, Welcome to Mayo Connect, and Welcome to this discussion.
Did your pain and visual problems come on suddenly? And have you found any ways to live with this until you get connected with a good opthamologist for another appointment?

Jump to this post

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

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2 replies
Mentor
Rosemary, Volunteer Mentor | @rosemarya | Oct 15, 2018
In reply to @dibr "No, the pain triggered immediately after the first laser zap and continues on to this day,..." + (show)
@dibr

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

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I found this discussion where might find some information. Eye Conditions YAG Laser Iridotomy Complications
https://connect.mayoclinic.org/discussion/yag-laser-iridotomy-complications/?pg=1#chv4-comment-stream-header

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DELIA SANDERSON | @deliasanderson | Oct 16, 2018
In reply to @dibr "No, the pain triggered immediately after the first laser zap and continues on to this day,..." + (show)
@dibr

No, the pain triggered immediately after the first laser zap and continues on to this day, including headaches. Pain and headaches are all on the right side as this is the eye that is having the issues. I have not found any ways to live with this.

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I would recommend staying off computer, cell phone, tv anything that might stimulate your eye. Also, I would reduce caffeine. The most important thing for your eyes is sleep so pay attention for a week to insure your getting sufficient eye rest. Plus wear sunglasses when in the sun. After a week or two, if pain is still intolerable, you’ll have to get it checked by an ophthalmologist or an eye institute. I’m sorry you’re having to go through such suffering.

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