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trigeminal neuralgia and Parkinson's diagnosis
Brain & Nervous System | Last Active: Jan 30, 2019 | Replies (9)Comment receiving replies
@numbskull Hello Sharon
I see that you just recently joined Mayo Clinic Connect and I'd like to welcome you. I am sorry to hear of your many diagnoses.
Since you mentioned having Parkinson's so I assume that you have a neurologist. Have you talked about microvascular compression syndrome with your neurologist? That might be a very helpful discussion.
Here is a link that describes this disorder, https://www.ncbi.nlm.nih.gov/pmc/articles/PMC2793889/ Please click on the link and read the description of symptoms and see how they compare to what you are experiencing.
What symptoms are you experiencing now that lead you to feel you might have this disorder?
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@hopeful33250 Hi Teresa,
Yes, I have been to 3 neurologist this past year. The most recent being a movement disorder specialist. I Googled “Trigeminal Neuralgia and Parkinson's Disease” because I wanted to know if they are related in some way. At the top of the google list came “Parkinson’s disease: an inquiry into the etiology and treatment” https://www.ncbi.nlm.nih.gov/pubmed/22053261
I asked this question to my neurologist, Could it be helpful to investigate the link between Parkinson's Disease and Trigeminal Neuralgia?
The response was, That is an interesting observation you make but as a clinical neurologist, I do not do research. An academic institution might be a great place to pursue this (like University of Michigan).
My symptoms are Tremor and cogwheel rigidity on right side of body, Parkinson's. Trigeminal Neuralgia is a constant numb burning pain with intermittent shooting pains into mostly left side of face and eyes. I have a feeling like I am wearing a party hat with the elastic under my chin and going up the sides of my face. I also get crushing pain from muscle spasms in my head and neck. I've had vertigo several times a month. Head rushes happen when the barometric pressure changes coming with so much pain that I can't even lay my head down, I have to sleep sitting up. It would be nice the find a doctor that has experience in treating someone with these 2 conditions.