Progressive supranuclear palsy

Posted by pattywelch @pattywelch, Sep 13, 2018

I have just been told about this as a possible diagnosis instead of Parkinson's Disease. Can anyone give me any information regarding this diagnosis? I have red the articles, but nothing is very helpful on what I can expect.

Interested in more discussions like this? Go to the Brain & Nervous System Support Group.

@hopeful33250

@pattywelch
Does your eye doctor have any opinion on the double vision?
I would be interested in hearing how your appointment goes at Mayo.
Has an appointment date been scheduled yet?

Jump to this post

not that I am aware of. I am waiting to hear from his office/ he believes the double vison is from the PSP.

REPLY
@pattywelch

not that I am aware of. I am waiting to hear from his office/ he believes the double vison is from the PSP.

Jump to this post

sory he is sending me to a neuro-ophthalmologist. my appt is Thursday @ 1pm

REPLY
@pattywelch

sory he is sending me to a neuro-ophthalmologist. my appt is Thursday @ 1pm

Jump to this post

@pattywelch
It would be nice to hear from you after your appointment, Patty. Will you post an update?

REPLY
In reply to @pattywelch "yes I will" + (show)
@pattywelch

yes I will

Jump to this post

i saw the neuro-ophthamologist today and she said that she doesn't know if I do have PSP or not but the only suggestion she has for me is to tape over the left lens when I read. i am still waiting to hear about the appt. I will update you when i get it.

REPLY
@pattywelch

i saw the neuro-ophthamologist today and she said that she doesn't know if I do have PSP or not but the only suggestion she has for me is to tape over the left lens when I read. i am still waiting to hear about the appt. I will update you when i get it.

Jump to this post

Hello @pattywelch

I appreciate your update after your eye appointment. I suppose that covering the left lense will help to eliminate the double vision? Will you let me know how that works out and if it helps you?

REPLY

i am still waiting to hear from the Mayo Clinic as to when my appt is should i continue waiting or should i call - and if so whom should i call?

REPLY
@pattywelch

i am still waiting to hear from the Mayo Clinic as to when my appt is should i continue waiting or should i call - and if so whom should i call?

Jump to this post

covering the eye is very effective for reading for an extended period of time.

REPLY
@pattywelch

i am still waiting to hear from the Mayo Clinic as to when my appt is should i continue waiting or should i call - and if so whom should i call?

Jump to this post

Hi, @pattywelch - glad to hear that covering the eye is helping with reading. As to your appointment, if you've not had any communication yet from Mayo Clinic and you are being referred by your doctor, I'd suggest following up with your doctor's office (to ensure the referral went through, and so they can track it down for you).

REPLY
@lisalucier

Hi, @pattywelch - glad to hear that covering the eye is helping with reading. As to your appointment, if you've not had any communication yet from Mayo Clinic and you are being referred by your doctor, I'd suggest following up with your doctor's office (to ensure the referral went through, and so they can track it down for you).

Jump to this post

I did that and they said they sent everything to the clinic and will hear from them.

REPLY
Please sign in or register to post a reply.