Glioblastoma Multiforme and Cognitive Loss

Our relative had a glio removed in July of this year. No treatment given because cognitive ability was lost with the seizure 4 days prior to the surgery. Now as of yesterday she has become non-mobile, and non-verbal accept for a few words. Only has had eggs to eat today - nothing yesterday. Her hubby is thinking this can go one for months - We don't expect it can. Any comments re the end of life with a GLIO?

Hi @nursnis,

I merged your discussion in to your previous discussion started on Glioblastoma Multiforme and Cognitive Loss so that you could reconnect with the members who've joined this discussion.

Thank you so much!

Hi @nursnis
My mother lost her battle with GBM. She Was diagnosed stage 4. Of the time they diagnosed her she had over 100 fingers that wrapped around her brain and her brain and two of the fingers develop tumors at the end of them. Surgery was not an option for her and we chose to do radiation for 30 days straight and a round of chemo in hopes to slow down the disease process. Over 3 months time she declined by the 3rd month she had no core strength to sit up on her own. Her headaches were getting worse she became more and more confused. We decided it was time to get help from hospice. But her oncologist refused to order hospice. I fired him and went with the hospice medical director. From my medical background and my personal experience, the end process of a GBM battle is painful for the patient and the families. I’m am sorry there is no easy way to tell anyone how the end will be as it is different for each individual. For my mom within 24 hrs she went from talking and eating to completely unresponsive other than moaning in pain. Within those 24 hours the cancer created holes externally and she went to sleep surrounded by her family and love she went to her forever home.

Praying for peace as you all endure this journey.
Dawn

I am so sorry for your loss Dawn. GBM is a horrid disease. I too have a medical back ground and it is so hard to watch the unknown progress. We are hoping for a peaceful ending. Our sis in law does request tylenol for H/A every day - but she is still eating well, however is unable most of the time to follow directions. Is sleeping more than previously. We just have to support her hubby and help in any way we all can to keep her comfortable.

Hi @nursnis, it's been a little while. Just wondering how your sister is doing? How are you?

Thanks for asking Colleen. She is back in a home and her left side is immobile - we think she may have had a TIA last week and that is what caused the stroke like symptoms. She sleeps about 18 hrs/day now. Doesn't talk a lot, but still knows us all. Has to be totally cared for - does eat, but makes a huge mess and always needs help. It is so very sad to see her like this. I guess it's all the normal progression. I hope peace will come to her sooner rather than later.. Very tough to see her husband and siblings watch her also.
Mary

<p>For low grade brain tumor received SOC, Temodar and IMRT. Have experienced cognitive impairment vis a vis memory. Your experience?</p>

@megxoxo, welcome to Connect. I moved your message to this discussion in the Brain Tumor group where you'll meet other members like @nursnis @johns66 @bjh369 @jaxjo @donnamar and @IndianaScott some of whom have experienced cognitive impairment and memory issues.

Megxoxo, you mention that you've had SOC, Temodar and intensity-modulated radiotherapy (IMRT). Is SOC surgery?
How has your memory been affected?

Colleen Young ,SOC stands for standard of care.

My short term memory has been even affected by treatment.

Thanks, Meg