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Antibody Mediated Rejection-Liver, anyone else??

Transplants | Last Active: Jun 13, 2023 | Replies (18)

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@rosemarya

@charicen, I want to send you a belated, yet a heartfelt "Welcome" to Connect. I have recently spent some time off-line traveling and I am trying to catch up.
I, too, have transplanted liver and kidney, but my circumstances are different from yours. I congratulate you on your longevity and your (in my opinion) admirable strength and determination in dealing with all that you must have experienced. People like you, are an inspiration for me as I continue to move forward with my donated organs.
I am completely unfamiliar with antibiody mediated rejection. However, I did see some information in Mayo's Research summaries when i looked. I am happy for you that you are maintaining without rejection.
How often do you go to Mayo for follow-ups? Does the transplanted kidney make things any more complicated?

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Replies to "@charicen, I want to send you a belated, yet a heartfelt "Welcome" to Connect. I have..."

I was going only annually for followups, however, in December 2017 they found a questionable spot on the transplanted liver that after a CT scan and contrast-enhanced biopsy ended up being a hepatocellular carcinoma (HCC). Since that time I have gone back at more frequent intervals to make sure that it is not recurring and the area where it was removed with ablation in March of 2018 is remaining stable. I went back at 3-month intervals for the first 9 months and am now at 6-month intervals. I am returning for appointments this Monday, June 3 for the first of my 6-month interval followups. In addition, I am hoping to get in to see Orthopedics then instead of in July since I live 300 miles away. I ended up with a hemarthrosis (bleeding/blood clot) in my right knee. After all the years of prednisone I have basically no cartilage on one half of my right knee and about half of the cartilage left on the other side of said knee. Oh well, just another part of life for me. All there is to do is to keep moving forward and deal with the cards that we have been dealt.