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Parkinson's Disease | Last Active: Nov 11, 2018 | Replies (54)

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@susan62

I feel the most like myself before being diagnosed with PD in the morning before I get out of bed. I would not say that I feel stiff. Slowly the discomfort and pain starts to creep back into my arm. As I think I have said, the pain takes different forms, from an electrical small buzz to a sharp pain, to a strong ache, to pins and needles, to a burning and to a twisting. It moves around and comes and goes. The twisting feeling is the worst. It is this pain that wears on me the most. I still excercise and keep very active. I can deal with the rest of the symptoms, but honestly it is this pain that makes it hard to keep positive.
Yes, I will let you know how my appointments go. Communicating with you helps a lot.
Thx,
Susan

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Replies to "I feel the most like myself before being diagnosed with PD in the morning before I..."

I agree. The twisting feeling is the worst. My main area of pain is my right thigh. That is where I have the twisting, pins and needles and cramping occurs. I hope you get relief soon.

Hello @susan62

I have been thinking about you. As I recall, you had an appointment at Mayo last week. If you are comfortable sharing about that appointment, I would love to hear if you were offered any new suggestions or help with your current pain problem.