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Does anyone have B-cell prolymphocytic leukemia (B-PLL)?
Blood Cancers & Disorders | Last Active: Nov 14, 2022 | Replies (188)Comment receiving replies
My guess is you are a lot younger than I am,or you have not been diagnosed for as long a period of time (approaching 6 yrs). I was told that an infusion of more than 2 bags at a time would be hard on the heart. My heart,lungs, kidneys are all fine ,but I have reached the point of needing an infusion every 2 weeks.I am going to the Lab tomorrow. It has been close to 3 weeks so I expect my hgb to be 5.??. Someone will call me to come to the ER,but I am never going through that again! I was told I can't have an infusion while on antibiotics which I am. They end Tues. at 9am,but I am not sure I can wait that long. No,the ER would make any difference. I will post again as soon as I know something positive.
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Barbara - I was first diagnosed October 2017. I'm 53. I had most of the transfusions during a hospital stay that lasted a week and a half and there were six bags total over the week and a half stay, In the hospital I was hooked up frequently to IV lines for mediations and hydration also and they took blood samples every day. Then after I got out of the hospital, it was 2 bags in each of the next 2 months (a one day hospital check in sitting in the infusion center armchairs). Once my red blood numbers were better I didn't have to do that again. Mostly i hated the 'hydration' IV that they also hooked up because the retention/swelling of what they pumped in lasted too long.
Your situation sounds very scary to me, and blood number very low. I hope you can get the infusion you need asap!