John, thank you a million. I will definitely go and look for that protocol and supplements you mentioned although I take some things for neurophaty already, still no improvement felt from them yet.
Wishing you a good health and good night !!
Hi @donnelson, it can be a challenge to find the latest posts. You’ll see in this discussion that the last post was made 1 day ago just above yours. Starting next week, Connect will be updated so that the posts will be presented in chronological order and you’ll be able to choose to see the newest posts first or at the end. In other words seeing the posts in order from newest to oldest or from oldest to newest will be your choice.
In the meantime, is there something that I can help you find?
I have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .
John, Volunteer Mentor | @johnbishop | Aug 9, 2018
@articmark, @user_ch98d0b5c and others, there already is an active group discussion here that you might want to consider if you have not already seen it.
I have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .
It turns out that I have had non diabetic and non-chemo progressive neuropathic issues since I was 10. At that age I discovered that I could walk on snow and it wasn't cold. Then at 16 my entire back started hurting both bones and muscles. I have a bad back but the doctors could never figure out why it hurt so much. Then excessive sweating above my waist when I exercised. This progressed so in the last year any exercise or hot and humid and I sweat like crazy above the waist and nothing below the waist. 5 years ago my right foot started togo painfully numb. A year later my left went too. The pain moved up my leg to my knees.
Then in November 2016 a tooth in my right lower jaw started going numb while my right ear started buzzing. Testing at the time determined that there was nothing wrong with my teeth and both ears showed perfect hearing. 8 months later, I have lost 60% of the hearing for low tones in my right ear. Old age hearing affects the high tones and all hearing aids work for high tones.
A year or so ago my hands and wrists started being painfully numb and tingly. About the same time my face and head became tingly, itchy, and painful.
I'm on just about every drug that is supposed to help neuropathic pain. Going to start a trail of IVIG next week.
I have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .
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John, thank you a million. I will definitely go and look for that protocol and supplements you mentioned although I take some things for neurophaty already, still no improvement felt from them yet.
Wishing you a good health and good night !!
Thank you !!!
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1 ReactionIt looks like I already join that group! :)) They inspired me regarding the supplements, except that I had to cut down the dosage !!
Thank you John !!
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1 ReactionCan you identify the latest posts?
Hi @donnelson, it can be a challenge to find the latest posts. You’ll see in this discussion that the last post was made 1 day ago just above yours. Starting next week, Connect will be updated so that the posts will be presented in chronological order and you’ll be able to choose to see the newest posts first or at the end. In other words seeing the posts in order from newest to oldest or from oldest to newest will be your choice.
In the meantime, is there something that I can help you find?
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2 ReactionsYes I would like to find people nondiabetic neuropathy
I would too. Should we start a separate group?
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1 ReactionI have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .
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1 Reaction@articmark, @user_ch98d0b5c and others, there already is an active group discussion here that you might want to consider if you have not already seen it.
Groups > Neuropathy > Living with Neuropathy - Welcome to the group
-- https://connect.mayoclinic.org/discussion/living-with-neuropathy-welcome-to-the-group/
John
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2 ReactionsIt turns out that I have had non diabetic and non-chemo progressive neuropathic issues since I was 10. At that age I discovered that I could walk on snow and it wasn't cold. Then at 16 my entire back started hurting both bones and muscles. I have a bad back but the doctors could never figure out why it hurt so much. Then excessive sweating above my waist when I exercised. This progressed so in the last year any exercise or hot and humid and I sweat like crazy above the waist and nothing below the waist. 5 years ago my right foot started togo painfully numb. A year later my left went too. The pain moved up my leg to my knees.
Then in November 2016 a tooth in my right lower jaw started going numb while my right ear started buzzing. Testing at the time determined that there was nothing wrong with my teeth and both ears showed perfect hearing. 8 months later, I have lost 60% of the hearing for low tones in my right ear. Old age hearing affects the high tones and all hearing aids work for high tones.
A year or so ago my hands and wrists started being painfully numb and tingly. About the same time my face and head became tingly, itchy, and painful.
I'm on just about every drug that is supposed to help neuropathic pain. Going to start a trail of IVIG next week.
How were you diagnosed?