← Return to Looking to connect with people who have non-diabetic neuropathy

Discussion
Comment receiving replies
@materk

I have non
diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition extends through feet up past my knees. Also in right hand. Starting about 6 years ago and continues to progress. I have very little pain so far. I take a wide variety of Shaklee Food Supplements .No medications .

Jump to this post


Replies to "I have non diabetic and non Chemo Neuropathy .Likewise my Father, mybrother and his son. Condition..."

It turns out that I have had non diabetic and non-chemo progressive neuropathic issues since I was 10. At that age I discovered that I could walk on snow and it wasn't cold. Then at 16 my entire back started hurting both bones and muscles. I have a bad back but the doctors could never figure out why it hurt so much. Then excessive sweating above my waist when I exercised. This progressed so in the last year any exercise or hot and humid and I sweat like crazy above the waist and nothing below the waist. 5 years ago my right foot started togo painfully numb. A year later my left went too. The pain moved up my leg to my knees.

Then in November 2016 a tooth in my right lower jaw started going numb while my right ear started buzzing. Testing at the time determined that there was nothing wrong with my teeth and both ears showed perfect hearing. 8 months later, I have lost 60% of the hearing for low tones in my right ear. Old age hearing affects the high tones and all hearing aids work for high tones.

A year or so ago my hands and wrists started being painfully numb and tingly. About the same time my face and head became tingly, itchy, and painful.

I'm on just about every drug that is supposed to help neuropathic pain. Going to start a trail of IVIG next week.

How were you diagnosed?

They found that I have short fiber, long fiber, motor and autonomic PN. They have not found any cause so they are saying that the old symptoms were hereditary and that symptoms in the last year or so are from a secondary cause which is autoimmune.

my mom tried IVIG and didn't see relieft. also, it was very stressful to her heart. make sure your heart is healthy before starting!!!

What is in the Shaklee supplements?